Countrygirl
Senior Member
- Messages
- 5,638
- Location
- UK
Maeve lived in Exeter, Devon UK and was the daughter of Sarah Boothby and The Times journalist Sean O'Neill. Sean has written many articles on ME as he witnessed his daughter's struggles with increasing illness.
Maeve needed a feeding tube from last March and was taken into The Wonford Hospital. As usual they were unkind to a patient with ME and did not accept the reality of her illness. When she left, she vowed never to return.
Her condition deteriorated, and she needed a PEG. A leading UK expert in ME contacted the hospital and even travelled there to visit them in person to explain the illness. They were not interested, dismissive of the illness, and failed to respond to urgent messages to the hospital which explained what was needed to be done to save her life.
A psychiatrist who worked there a few years ago and who set the tone, was one of the BPS PACE cabal.
Maeve died aged 27 years on October 3rd 2021These are from Sean's tweets:
Pinned Tweet
Sean O'Neill
@TimesONeill
·
1h
My eldest daughter Maeve died aged 27 on October 3. For half her life she had Myalgic Encephalomyelitis (ME). Bit by bit this awful illness stole the youth, promise, independence and eventually the life of an intelligent, creative, wonderful young woman.
Medicine’s understanding of ME is astonishingly poor; patients like Maeve are stigmatised and discriminated against. Millions around the world have ME; 25% are severely affected. There is so much more to say but it must wait until the grief is less overwhelming
Sean O'Neill
@TimesONeill
We buried Maeve 3 weeks ago today, on October 29, the same day new
@NICEComms
published new guidelines for
@NHSEngland
treatment of ME. The guidelines show people with ME are being heard but more is needed: open minds, compassion and above all RESEARCH, RESEARCH, RESEARCH
10:06 AM · Nov 19, 2021·Twitter Web App
Thread
See new Tweets
Conversation
10:06 AM · Nov 19, 2021·Twitter Web App
Sean O'Neill
@TimesONeill
·
1h
Replying to
@TimesONeill
Medicine’s understanding of ME is astonishingly poor; patients like Maeve are stigmatised and discriminated against. Millions around the world have ME; 25% are severely affected. There is so much more to say but it must wait until the grief is less overwhelming.
Maeve needed a feeding tube from last March and was taken into The Wonford Hospital. As usual they were unkind to a patient with ME and did not accept the reality of her illness. When she left, she vowed never to return.
Her condition deteriorated, and she needed a PEG. A leading UK expert in ME contacted the hospital and even travelled there to visit them in person to explain the illness. They were not interested, dismissive of the illness, and failed to respond to urgent messages to the hospital which explained what was needed to be done to save her life.
A psychiatrist who worked there a few years ago and who set the tone, was one of the BPS PACE cabal.
Maeve died aged 27 years on October 3rd 2021These are from Sean's tweets:
Pinned Tweet
Sean O'Neill
@TimesONeill
·
1h
My eldest daughter Maeve died aged 27 on October 3. For half her life she had Myalgic Encephalomyelitis (ME). Bit by bit this awful illness stole the youth, promise, independence and eventually the life of an intelligent, creative, wonderful young woman.
Medicine’s understanding of ME is astonishingly poor; patients like Maeve are stigmatised and discriminated against. Millions around the world have ME; 25% are severely affected. There is so much more to say but it must wait until the grief is less overwhelming
Sean O'Neill
@TimesONeill
We buried Maeve 3 weeks ago today, on October 29, the same day new
@NICEComms
published new guidelines for
@NHSEngland
treatment of ME. The guidelines show people with ME are being heard but more is needed: open minds, compassion and above all RESEARCH, RESEARCH, RESEARCH
10:06 AM · Nov 19, 2021·Twitter Web App
Thread
See new Tweets
Conversation
10:06 AM · Nov 19, 2021·Twitter Web App
Sean O'Neill
@TimesONeill
·
1h
Replying to
@TimesONeill
Medicine’s understanding of ME is astonishingly poor; patients like Maeve are stigmatised and discriminated against. Millions around the world have ME; 25% are severely affected. There is so much more to say but it must wait until the grief is less overwhelming.
Last edited:
