I hate talking treatments because we are all different, but I am one of those anecdotes that feel better, i.e., not as dreadful, when on abx. I have been off abx now for about six months and each day I slip down further. So I feel for you roxie60. I know you know Lyme, and I cannot help but wonder if you do that little twostep of going on and off abx, and if it helps you at all.
I know that when I am on abx, I am always profoundly aware that I may be doing damage across so many different overlapping areas that I don't even want to think of it.
But I cannot deny that it helps me, or at least seems to.