Low WBC High EBV Lyme Positive

[sscobalt93]

I have also noticed that my intolerance to meat has improved greatly(with the addition to betaine HCl and digestive enzymes). I do feel better after eating red meat. Makes me wonder if I have been iron deficient as well. I do limit my meat consumption though to 1 serving per day. I will get my protein from beans as well.

 

[Daffodil]

sscobalt..brain fog is caused by d-lactate bacteria in the gut, according to my specialist (he is the best and has been researching this for decades). not quite sure what to do about it, though lol

hope you can find lots of support on this board.

xoxoxo

 

[sscobalt93]

sscobalt..brain fog is caused by d-lactate bacteria in the gut, according to my specialist (he is the best and has been researching this for decades). not quite sure what to do about it, though lol

hope you can find lots of support on this board.

xoxoxo

I've recently had a stool test showing I have no good flora in my gut. No candida either, it was weird. No real pathogenic bacteria either. I did have a klebsiella overgrowth though. And from what I gather that produces ammonia.

I am looking into prescript assist. I took it for a few days in the past with good results as far as brain function, but i constipated me just a little.

I have been a vegan for quite a while. I am reading that vegans have low white blood cells due to less 'inflammation' from animal products. Makes sense in theory. But maybe we need a little bit of so called 'inflammation'

 

[Daffodil]

@sscobalt93 ...i find that eating meat helps me with energy a little. i usually stick to chicken and sometimes fish. protein is probably very important for us.

if i found a probiotic that helped with brain function, you would have to pry it out of my cold, dead, hands lol. all the powerful ones give me diarrhea and i have read that people with leaky gut should be careful taking them...so not sure.

i would like to try some without D-lactate bacteria such as Custom Probiotics or Align but don't want to waste any more money trying different brands.

You can try fermented foods and gelatin..probably all kinds of things out there to try...

xoxo

 

[Charles555nc]

Okay so I recently received some bad news. I went to the doctor to get a Lyme Test. The Dr i went to tests for 10 bands of Lyme as well as Epstein Barr Virus, Hepititus, WBC, and some other things.

Please help me.

The best diet Ive found is low to 0 carbs, high protein, and low to 0 fat. So grilled chicken without the skin, some fruit like bananas, carrots, distilled water to drink, with a non caffeine tea as your choice. Clearly your lyme is still progressing so that is a real concern.

Go out and buy some Xylitol, I want you to take two big scoops, first thing in the morning on an empty stomach with distilled water to wash it down with. Dont eat for an hour after. Do that for two weeks and then continue as much as you like.

Reason: Xylitol is an artificial sugar that confuses bacteria, parasites, and bio films into trying to eat it (they think it is sugar) and them then dying. Xylital is one of two actually healthy artificial sugars.

Supplements regardless of the test results: Zinc, Molybdenum, 5 grams of sodium ascorbate (non acid vitamin C), 3 pills of phosphatidyl choline, 2000iu of vitamin D, 1pill of niacinamide, and two pills of selenium- every day. The tests for minerals are wildly inaccurate, intracellular vs extracellular, hair vs body content, etc etc.

This will hopefully stabilize you, but not cure you. I personally have seen 0 results to herbal products and spent probably over 1000$ on them, but some people do react to them. I had to turn my adrenals back on with hydrocortisone and I had to turn my testosterone back on with Clomid. Low dose naltrexone 4.5mg is worth trying, go low and go slow. If you have night sweats, try Famvir, which cured only my night sweats.

Im looking into more experimental methods of getting cured, but of course I cannot recommend anything like that just yet. There are only tests for 3 or 4 species of lyme out of more than 100 species of lyme, so you dont have to obsess or go bankrupt over testing. Lyme, mycoplasma, bartonella, babesia, viruses, you generally have to hit it all.

 

[sscobalt93]

The best diet Ive found is low to 0 carbs, high protein, and low to 0 fat. So grilled chicken without the skin, some fruit like bananas, carrots, distilled water to drink, with a non caffeine tea as your choice. Clearly your lyme is still progressing so that is a real concern.

Go out and buy some Xylitol, I want you to take two big scoops, first thing in the morning on an empty stomach with distilled water to wash it down with. Dont eat for an hour after. Do that for two weeks and then continue as much as you like.

Reason: Xylitol is an artificial sugar that confuses bacteria, parasites, and bio films into trying to eat it (they think it is sugar) and them then dying. Xylital is one of two actually healthy artificial sugars.

Supplements regardless of the test results: Zinc, Molybdenum, 5 grams of sodium ascorbate (non acid vitamin C), 3 pills of phosphatidyl choline, 2000iu of vitamin D, 1pill of niacinamide, and two pills of selenium- every day. The tests for minerals are wildly inaccurate, intracellular vs extracellular, hair vs body content, etc etc.

This will hopefully stabilize you, but not cure you. I personally have seen 0 results to herbal products and spent probably over 1000$ on them, but some people do react to them. I had to turn my adrenals back on with hydrocortisone and I had to turn my testosterone back on with Clomid. Low dose naltrexone 4.5mg is worth trying, go low and go slow. If you have night sweats, try Famvir, which cured only my night sweats.

Im looking into more experimental methods of getting cured, but of course I cannot recommend anything like that just yet. There are only tests for 3 or 4 species of lyme out of more than 100 species of lyme, so you dont have to obsess or go bankrupt over testing. Lyme, mycoplasma, bartonella, babesia, viruses, you generally have to hit it all.

Fruits are carbs. The thing is my gut bacteria is out of wack. Eating nothing but protein would make the problem worse. Sadly. Also I have issues with too much ammonia which contributes to my fog.

Also when you say you have seen 0 results with herbs are you saying 0 results with herbs in your own personal life or online? There are plenty of people getting better by the reccomendations of the Cowden protocol. Which I am starting today. I just took my first drop of samento and it's stirring something up! My tattoo is having stinging pains in it, the herx is not that bad. But it has pissed something off! OR because samento is a immune stimulator it could be healing old scar tissues(but this happened like 10 minutes after taking the dose!)

Also as I type right now my shoulders are getting sore and I am getting flushed skin. This is insane! This is just after 1 drop of this stuff. I can tell it's powerful!

 

[sscobalt93]

@sscobalt93 ...i find that eating meat helps me with energy a little. i usually stick to chicken and sometimes fish. protein is probably very important for us.

if i found a probiotic that helped with brain function, you would have to pry it out of my cold, dead, hands lol. all the powerful ones give me diarrhea and i have read that people with leaky gut should be careful taking them...so not sure.

i would like to try some without D-lactate bacteria such as Custom Probiotics or Align but don't want to waste any more money trying different brands.

You can try fermented foods and gelatin..probably all kinds of things out there to try...

xoxo

Just give the prescript assist on Amazon a look. There are a lot of people reporting lots and lots of benefit from it. These are not your regular bifido/lacto bacteria. They are soil based organisms. They are so powerful most people need to start with 1/4 a capsule and work their way up to 2 caps.

The dose recommendation is 2 caps for 30 days then 1-2 times a week there after. This probiotic is spore forming so that means they actually colonize your gut and sees themselves in there

Edit: I do want to clarify that the recommendation is not my own, it's what is instructed on my bottle.

 

[Daffodil]

hi @sscobalt93 .....I read about it and it looks very intriguing....but this idea of taking bacteria when I know I have leaky gut is kind of scary to me. Many doctors prescribe probiotics these days, so maybe I am wrong...but I have spoken with one top leaky gut specialist who says he stopped prescribing them. Not sure myself....but I would like to see some improvement in permeability before I start any again...but then maybe they might help heal it...who knows. so confusing.

 

[sscobalt93]

@Daffodil It's a guessing game that's for sure. Are you 100% sure you have leaky gut? Are you taking l-glutamine? Colostrum? N-acetyl-glucosamine? I only ask because these seem to be the go to when it comes to healing a leaky gut. Have you tried Florastor? It's a beneficial yeast. It coats the intestines and may promote healing. These are just suggestions to look into if you haven't already. Slippery Elm helps as well from personal experience, it may or may not help you though. Trying things out are the only way to see if it will work.

I have read that Soil Based Organisms stimulate the immune system and promotes healing. Interestingly enough Bactus Subtilis has been shown to inhibit lipid coated viruses! Such as Herpes, EBV, and even HIV!

 

[Daffodil]

@sscobalt93 wow they are really only scratching the surface so far eh. i probably have no bactus subtilis which is why EBV ruined my life.

i know i have leaky gut cuz of the sCD14 test (s=soluble). Twice it was like 2000 even though i had been on a diet for 2 yrs to fix it.

But anyway, i am not supposed to have milk or caffeine but i cannot give up tea. And i am willing to die for tea. I dont care anymore i stopped even trying to give it up

 

[sscobalt93]

@Daffodil what kind of Tea do you drink? There are plenty of tasty tea's that are caffeine free!. They may even help your stomach out. There is a place by my house called Tevana, it's literally starbucks but for tea. You go there and they have samples all over. They show the caffeine content, it's great. $5 a cup though. But you can also buy tea to take home. Tea's shouldn't be avoided. They contain lots of antioxidants. Just do a bit of research. I mean after all most herbs can be made as tea which may promote healing!

 

[Daffodil]

@sscobalt93 ....but the problem is, i MUST have my black tea with milk. i just gotta have it. i dont want other herbal teas or any green teas....i want orange pekoe with milk and honey! mmmmm i look forward to tea time all day. sometimes i drink it twice; sometimes thrice!

 

[sscobalt93]

@sscobalt93 ....but the problem is, i MUST have my black tea with milk. i just gotta have it. i dont want other herbal teas or any green teas....i want orange pekoe with milk and honey! mmmmm i look forward to tea time all day. sometimes i drink it twice; sometimes thrice!

Have you tried Almond Milk or any diary free alternatives? This could be a start.

Ever try Rooibos? https://en.wikipedia.org/wiki/Rooibos

 

[Daffodil]

@sscobalt93 wow no i had not heard of that tea..it looks like it might taste yummy. i used to try a variety of teas from tea shops...i remember liking one called Earl Grey Cream..but still prefer the ol' orange pekoe.

i have tried a variety of decaf teas which i do not find satisfying at all.

i cant have almonds according to the food intolerance testing and soy tastes gross to me. coconut milk tastes gross in tea, too. i am not sure if i have tried rice milk, but i cannot imagine it tasting good.

i am allowed goat's milk but it is soooo gross to me lol. i heard that nigerian dwarf goats give a milk that is not goaty tasting if you feed them right and keep them away from the male goats or something...but something tells me that asking my local grocers to order nigerian dwarf goat's milk wouldn't go over too well...

for a little while, i tried to replace tea with decaf coffee and a coconut milk/maple syrup/vanilla concoction. it actually wasn't too bad but took too long to make. i would have to make the creamer and then split it up into little amounts and freeze, thaw before i needed it etc..coconut milk doesn't last that long in the fridge. i have never owned a coffee machine and ended up buying a pour over ceramic cup thingie which took forever to make coffee.....so i just gave up out of frustration. also, the coffee with the coconut creamer was so rich..it tasted like it was full of calories and filled me up too much. my mom drinks tea regularly so it was just easier to drink that. i do use lactose free milk but still, i am not supposed to have whey protein. the doc says as long as my overall diet is healthy, its OK.

have you ever heard of bullet-proof coffee? they use gelatin in it i think, and coconut oil or something..its some kind of trendy drink among health nuts.

xoxoxo

 

[sscobalt93]

@Daffodil Yeah I have heard of Bulletproof Coffee, I don't drink coffee though. I used to drink it alot, but now my system cannot handle it. It's wierd. I can drink like 10 beers and I don't get drunk but coffee after 1/4th of a cup messes me up. My blood sugar drops and I never have problems with my blood sugar.

I don't drink alcohol anymore though. This was what I noticed right before I got really sick I could pound alchohol and not get drunk. Clearly liver related. My liver has been a wreck for a while now. My enzymes go sky high every now and then. I do always have a pain in my liver. It's been looked at extensively and all the doctors say it looks like a perfectly healthy liver. I even had one say it's the cleanest she's seen! That's hard to believe...

 

[Daffodil]

@sscobalt93 ..i guess you have probably had a CT scan or MRI or whatever of the area? My liver is fatty now cuz of all the inflammation I have had for decades.

Even decaf coffee messes you up?

xoxo

 

[Tammy]

I don't drink alcohol anymore though. This was what I noticed right before I got really sick I could pound alchohol and not get drunk. Clearly liver related. My liver has been a wreck for a while now. My enzymes go sky high every now and then. I do always have a pain in my liver. It's been looked at extensively and all the doctors say it looks like a perfectly healthy liver. I even had one say it's the cleanest she's seen! That's hard to believe

I'm sure you may already know this but EBV can attack the liver.

 

[sscobalt93]

@Daffodil I would drink regular coffee over decaf any day. They use a chemical process and I try to stay away from as many chemicals as possible. I have read that low carb diets can reduce a fatty liver, but I have also read a high carb low fat low protein diet can also reduce a fatty liver. My thoughts on that is carbs and fat are not friends. You either utilize one or the other. I mean we obviously need both, but fats hinder carbs and vice versa. I was a high carb low fat eater for a year and I never gained a pound. I was eating like 5000 calories a day as well. This was all in fruits. I believe that type diet is very cleansing, but not a long term solution.

 

[sscobalt93]

I'm sure you may already know this but EBV can attack the liver.

Yes I knew that, thanks for pointing it out though. I hope this thread can be useful to someone someday. I know threads from the past have helped me quite a bit in my journey. I had swollen glands in my neck for a long time until I did saunas. That was the only thing to fix that problem. In fact sauna's have been my #1 source for detox. I feel so good afterwards(I know i have stated this before but its a big component to my healing)

 

[duncan]

@sscobalt93 , you mention elevated liver enzymes, sweats, etc. You've likely been exposed to Borreila, although you do not appear positive for it using the CDC's 2T metric. But I don't place too much store in that 2T tool anyway. Your band 23 is interesting, and who says you haven't a strain not on their map? You know, there are ticks out there pumped with strains like G39/40 or N40, and they might not conform to the CDC's protocol as politely and regularly as B31. For instance, did you know strain N40 might not be susceptable to the C6 Peptide test? And then there's strain 49736 that's a mutant strain that doesn't even carry bands 31 or 34,; it's possibly human engineered.

And that's just strains. You could talk species and it gets even messier. More dangerous too. B miyamotoi anyone? Or anyone of the other 34 Borrelia species?

But those elevated liver enzymes...the sweats...Have you ever been checked for babesia? Not that babesia tests are very good, because there not. If you test positive for antibodies, though, or better still, nail one of the parasites in a microscope...Well, babesia can be nasty being related to malaria and all. And depending on where you live, more than half of the ticks are laden with multiple co-infections.

So, if you do have Lyme - or even if you don't but you're sure you've been tick-bitten - well, you may want to check to see if you've babesia.