I know you said that you don't have POTS or OI but if you skip your POTS meds for a TTT, your HR is in the 140's all day? I just want to make sure that I understand. Were you taking POTS meds when you wore the holter monitor?
Or... do you mean that you do not take any meds for POTS and it would be the MCAS meds that you would be skipping for the TTT? I think you are saying that in your case, if the MCAS is under control, then you have no POTS or tachycardia? My situation was different and even when my MCAS was in complete remission, I still had POTS. And I actually had POTS for two years (2013 & 2014) prior to even developing MCAS in 2015. Now it is all in remission but the POTS was the final thing to go into remission in 2018.
I forgot, is the issue that your doctors will not prescribe it or that your insurance will not pay for it?