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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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List your supplements

K

Katie

Guest
I recon I take less than average though I'm terrible for remembering to take them. So here's my potentially meagre list.

For Immunity:
Echinacea 2X per day
Iron and Vit C 1X per day

For Energy:
Co Enzyme Q10 2X per day
Vit B Complex 1X per day

For Brain Function:
Omega 3 Concentrated Fish Oils with Vit E 1x per day



That's it. Five.

So, let me know what you guys and gals take for sharing and comparing purposes :) Maybe I'll stumble upon a treat or two. I will add that Co enzyme is by far and away the best supplement I've taken which also helps with that low energy time of the month too. It's also the most expensive. Ain't that capitalism for ya :D
 

Jenny

Senior Member
Messages
1,388
Location
Dorset
Supplements

Good idea Katie

This may take a while though...

These are daily amounts:

CoQ10 with bioperine 100mgX1

CaMgZn 500mg x1

Mg malate 1000mg x 2

RxOmega3 Factors EPA 400mg/DHA 200 mg X 2

Udos Choice Ultimate Oil Blend 3 tablespoons

Udos Choice Super 8 Hi-Potency Probiotic (because taking doxy)

Selenium 200mcg x1

Lysine 1000mg x1

Vit D3 1200IU x3

Vit c 500mg x12

Super bio-curcumin 400mg x3

Active B12 Dibencozide 3000mcg 1/2 every other day

Methyl B12 5000mcg 1/2 every other day

Reduced glutathione 50mg x3

Vit B6 100mg 1 every other day

Homeopathic mould, yeast and dust allergy treatment 15 drops x3

Olive leaf extract 500 mg x2 (just restarted, couldn't tolerate before, trying again)


I've been taking most of these for years. I've no evidence that any of them are doing anything at all, but for all I know I could be much worse without them....
 
K

Katie

Guest
Holy moly, that's a lots of supplements, you've got a whole branch of Holland and Barrat to get through each day!

Can I ask why so much Vit C? I take 60mg once a day but I also like my oranges :D Also, what do you take selenium and lysine for?
 

glenp

"and this too shall pass"
Messages
776
Location
Vancouver Canada suburbs
Ginseng and royal jelly in vials

Over the years, off and on I have tried a daily vial of royal jelly and ginseng --I have gone on and off a few times and feel that it does help, after about 3 weeks of daily use it starts to kick in for me. I think it is through Dr Hydes Nightingale site---the links there have some of the treatments

glenp
 

anne_likes_red

Senior Member
Messages
1,103
My very short list

A therapeutic strength probiotic

Omega 3 fish oil (fermented)

***

(And interested in looking at Co Q10 again.)


In the past (24 -25 years) I've taken much, much more....biggest positive change for me personally has been diet.
 

Jenny

Senior Member
Messages
1,388
Location
Dorset
""Can I ask why so much Vit C? I take 60mg once a day but I also like my oranges Also, what do you take selenium and lysine for? "

(I don't seem to be able to use the quote facility on this board, or the icons, perhaps it's because of my browser)


Hi Katie

I feared someone would ask why I'm taking these things! Sometimes I can't remember.....

But I think this is why:

I've looked at so many protocols over the years, many of which are contradictory. But I've tried to go with what seems common to many of them. A lot of them suggest high dose Vit C, particularly in a bad relapse, which I'm in now (eg Marty Pall is keen on this I think, but he may not recommend such a high dose).

Lysine- I was doing an experiment with this. I think Rick Van K was keen on finding out if it helped people, as it may act on herpes viruses. So I was on 1000mg three times a day for 8 weeks. I wasn't feeling any better, so thought it prob wasn't doing anything, or might have been hindering any recovery, so I'm just using up the bottle by taking one a day.

Selenium - again many protocols include this. May increase gluathione and reduce oxidative stress.

Sometimes I get my supps from Holland and Barratt, but mostly I use iherb. As long as you keep your order under 18 you don't have to pay import tax in the UK and their prices are much lower than UK prices, even with shipping costs. Also some things are hard to find in the UK.

Jenny
 

Min

Messages
1,387
Location
UK
for Lyme & co-infections:

Cat's claw tincture alternated with Cumanda
coconut oil

for ME & fibromyalgia:

vit D
Co-enzyme Q10
Acetyl-n-carnitine
& alongside Verapamil prescribed by my M.E. specialist as a calcium channel blocker :
magnesium
calcium
vit c

for cataracts:
Lutein

also trying phyllanthus niruri (which I highly recommend to anyone who wants horrible wind)
 
K

Katie

Guest
for Lyme & co-infections:

Cat's claw tincture alternated with Cumanda
coconut oil

for ME & fibromyalgia:

vit D
Co-enzyme Q10
Acetyl-n-carnitine
& alongside Verapamil prescribed by my M.E. specialist as a calcium channel blocker :
magnesium
calcium
vit c

for cataracts:
Lutein

also trying phyllanthus niruri (which I highly recommend to anyone who wants horrible wind)

I found the sausages I had last night had that effect ;)


I certainly seems like Co Enzyme Q10 is a goer. I might try going back on the zinc and magnesium tablets after Christmas when I'm a little more flush.

Jenny, thanks for explaining your dosages, must be hard to keep track of everything! The Selinium sounds interesting so I might have a little look into it. I get most of my supplements from Boots on buy two get one free hence I've built up a massive backlog of certain pills.

Which reminds me, I'm off to take my next round of sups with lunch :D
 

xlynx

Senior Member
Messages
163
Location
London, UK
Hi Katie,

I am currently taking:
Vitamin C 3000 mgs
EPA DHA Cod Liver Oil
Magnesium Citrate 1200 mgs
D Ribose 10 mgs
Acetyl l carnitine 2000 mgs
Pro Biotic
Adrenal glandular every other day
Vitamin D3 1000ui
B complex with folate
B12 Sublingual 5000mgs
B3 Niacidimide 100mgs
Co Q10 200mgs
Zinc 30mgs
L Gutathione

I also take a multivitamin with selenium and lysine and all the amino acids and other things in but its in the kitchen and there is no way I am gong there :).

I am taking these after reading the books fatigued to fantastic and Dr Myhill and then when I actually went to see a doctor who works with Dr Myhill and did some tests he increased my dosage as above.

The doctor did tell me that I would have to reduce the B3 in 2 months.

Very difficult to judge how much they help. This is a pretty expensive regime to keep up but I do get some on healthcare
 

Jenny

Senior Member
Messages
1,388
Location
Dorset
Hi Min

Can I ask - is the verapamil making any difference? (Presumably that's not a supplement though?) I was high dose nimodipene for 2 months after my brain haemorrhage - that's a calcium channel blocker too - and I felt very well!

I've tried it since but only managed to persuade docs to give me a low dose, and I haven't noticed any difference.

Theoretically its action seems to make sense for us as it increases dilation of blood vessels.

Jenny
 

sarahg

Admin Assistant
Messages
276
Location
Pennsylvania
*Quercetin (helps my allergies and IC immensely, is also supposed to support mitochondria)

*Maitake mushroom extract ( I usually get a product called myco-forte that is maitake, shitake and reishi mushroom extracts and is cheaper and works better, but I haven't gotten to the place I need to go to get it)

*artemisinin (I take it at night to keep it away from the anti-oxidants I take in the morning)

*olive leaf extract

*Malic acid (really really helps get rid of muscle pain and helps me sleep)

*thymic protein

*"mitochondia ignite" from prohealth (maybe I'll get the bottle later and list the ingredients)


SOMETIMES
*EPA/DHA for muscle pain and inflammation (due to endometriosis)

*Coenzyme Q 10, but I really question whether it does anything for me

*Lysine (I'm just finishing the bottle, my Dr. said he didn't think it would help and I think he was right)

*vitamin d and selenium I take about once a week or every other week


I make a habit of not starting more than one thing at a time so I can sort of tell what is working. By poverty or design I stop one at a time every so often for a month or so, if I don't notice a difference I don't restart. Each thing that I take every day I take because I really notice a difference in symptoms or ability by using them, and really notice a gradual decline when I don't have them. I figure they're a good enough stop-gap until I can figure out a way to fix the underlying issues.
 

fds66

Senior Member
Messages
231
At the moment

Ca/Mg/Zn I find that lessens my muscle cramps and twitches. I really think these make a big difference to me. I might experiment with some magnesium without the calcium to see if it helps my sleep. A project for in a while.

Aloe Vera and peppermint capsules - helps with IBS symptoms. I don't take the peppermint all the time, just when I get lots of stomach cramps.

Just restarted CoQ10 to see if it has an effect - I have taken it before several times but I'm reinvestigating whether it makes a difference. Started on 30mg a day and I'm going to increase a bit to see if it helps.

Multivitamin/mineral plus B vitamins - I should be taking these all the time but go for periods of time where I forget or just to see if they are making a difference.


I have taken many things in my time and always try to start one at a time. I give it three months then stop it. If I don't notice a difference then I don't bother again, at least for a while. At the moment I'm hardly taking any at all.
 

Min

Messages
1,387
Location
UK
Hi Min

Can I ask - is the verapamil making any difference? (Presumably that's not a supplement though?) I was high dose nimodipene for 2 months after my brain haemorrhage - that's a calcium channel blocker too - and I felt very well!

I've tried it since but only managed to persuade docs to give me a low dose, and I haven't noticed any difference.

Theoretically its action seems to make sense for us as it increases dilation of blood vessels.

Jenny

Hi Jenny, I've heard that Nimopidene is very good & am sorry you can't have an adequate dose to be effective.

I have only taken Verapamil for 2 months so far & the doc says it will take 6 to start working. In theory it's supposed, with other supplements, to help replace the calcium in my cells that shouldn't be there with the magnesium that apparently should.
 
Messages
877
vitamins

interesting suggestions.

Sarah,
If you like Thymic protein, I tried something called "Thymic immune factors" from Life Extension. It is freeze dried raw glands. Whew! what a kick. I quit becuase I crashed after doing a bunch of stuff, but may have to try it again. Because I got a good buzz for a week from it.

I do freddd's protocol for the most part. It all works together, just like Freddd says.

however I do have one other mineral combo worth mentioning; It includes a bunch of good minerals all in one, is the Kirkland(costco brand) calcium citrate. It includes Vit D, K, Mag, zin, and more. I could feel the extra kick when adding it to freddd's protocol. It has a good mix of the important minerals.

I'm going to try my mushroom mix again now that I have been reminded about it.
 

Frank

Senior Member
Messages
850
Location
Europe
Gut related
-----------
good quality probiotic
pepermint oil gels
(mucoperm with L-glutamine, zinc, MSM, spirulina, ...)

Digestion aid
------------
Betaine hydrochloride with pepsin (country life)

Anti-microbial
-------------
olive leaf extract

Vitamins and minerals, others
----------------------------
Marine grade phytoplankton
Noni Juice

Going to try
-----------
Cod liver oil (for A en D)
Metafolin (as advised by Freddd)

I'm also looking for something good for immune support, i'm not a fan of energy supplements like NADH etc.. they are in my view to far away from dealing with the cause.
 
Messages
877
comes in capsule

Mark,
That may be too extreme for me. I reluctantly am using the thymic protein because it is working. It stopped me from getting every little bug I came in contact with. (ingredient listed as "purified calf thymus protein") BLEHHH! I don't want to gross anybody out but I really think it tastes like blood.

I have been a vegetarian since I was in 3'd grade, so I am probably more freaked out by stuff like this than most people. I similarly struggle with my consumption of fish oil products. I have even tried on a few occasions to eat fish and chicken since I have become sick, just on a nutrition principle, but it has not gone well and even little bites of things have ended with me throwing up behind bushes! But I have come to peace with the thymic protein, we are sort of peacefully coexisting.

What do freeze-dried raw thymus glands taste like exactly? do you eat them or dissolve them or what? Are they screened for stuff like mad cow? are they from organic cow farms? I'm sorry, that's a lot of questions you probably don't know most of that off the top of your head.


That a pretty serious reaction you have to fish oil and chicken! Glad you can be at peace with your thymic protein though.You would have to make peace with a few other organs if you want to try this stuff though. It has spleen and a few other glands in it as well.

The stuff I mentioned comes in capsule though I don't taste them later, but then again I have grown up on beef and other meat.

I would go into more detail on the supplement, but after seeing the supplement manufacturer wants to "kill health care reform leglsation" on their website homepage, I don't want to send them any extra business.


Mark