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Hi @humanrising, Ms Irene had mentioned that Bolognese will send a written report following the videoconferences, just wondering did you receive one and if so, did it give you any more insight?
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Can I ask how severe are u and are the big risks worth it? I don’t think it’s the answer for most people as we can see with even those who had it. Cfs is really a nervous system dysregulation...I just had the cervical traction test with Dr. B. and am a candidate for surgery- Fusion. I'm happy to share that experience with anyone. I'll respond to the thread or to a private message.
I'm also interested in the experience anyone has had with this surgery - anything they did to prepare (PT, etc.) and what the post-surgery recovery was like. There is a long list of potential complications. I'm trying to better understand that list - along with the post-recovery process - in weighing the risks and benefits of the surgery. Feel free to share here or in a private message.
My very brief description of traction results - at 35 pounds, I had substantial relief of my major symptoms (say 85%)) and my BDI and BAI measurements changed significantly as well.
Personally I wouldn’t think going near such invasive stuff with such bad track record if u are not very very severe and even then only if this is definitely the answer (for most it’s not).I am moderate/moderately severe. I'm on long-term disability but right now I am not bedridden. (I was several months ago.). I do experience my symptoms as a dysregulation so understand the connection to CCI. And yes, weighing the risks and benefits is exactly where I am. Right now, I think I will take six months or so with PT to further evaluate and try alternative means. I'd really like to better understand real-life experiences with the surgery - rather than just the laundry list of potential complications that I got from Dr. B. The invasive cervical traction test was surreal - having the symptoms "disappear" at a particular weight almost felt magical.