A bit - thank you. So you first became ill, with various symptoms, including food intolerance and low energy. After starting the GcMAF, all symptoms improved, including food intolerance and more energy. Then, recently, your old symptoms returned, except you still are better tolerating foods and kept your increased energy?
I'm just trying to get an idea if the GcMAF was still overall helpful to you, despite the recent relpase. Thanks!
Hi Christopher,
Unfortunately, there's no easy answer to that: I have the feeling, some things have improved, and some things not, and other things not at all. With my current relapse, I have the feeling for some aspects of the disease I'm back at square one, it's comparable as I was at my worst. Some aspects, like PEM, this got better, and it feels that I didn't relapse on that aspect. Cognitively, I'm doing better, still relapsing when inflammation increases, though. But, I must say, if I treat my liver, cognitively I do better.
I wished Gc-Maf would be a cure for me, but at this moment, it doesn't look like that. I wished that I could stop Gc-Maf at one point, it looks I can't do without. From my experience, I can say that experimenting with supplements/vitamins while on Gc-Maf, is not good, unless perhaps you're under supervision with a well experienced doctor. For me, supplementing with Vit-D3 while on Gc-Maf was very bad on the longer run(my vit-D3 went down at one point, just before my huge relapse). It's better you start supplementing Vit-D3 BEFORE starting Gc-Maf at all.
Also, to me it looks very important that you keep a strict diet, no alcohol, no gluten, no lactose/fructose/sugar. A zero-tolerance is required. Perhaps, under strict circumstances, Gc-Maf will work better, who knows? I didn't keep a strict diet, more, last summer, while on holiday, I drank one time way too much alcohol and became so drunk like I was never before in my whole entire life. Rightafter I became very ill, with a fever. Perhaps this was the cause for my relapse 4 months later... I still drink alcohol, sometimes. But then it's a glass of wine during dinner. And I didn't keep a strict diet, because it's quiet impossible when you also have a partner.
Perhaps an important thing to add: I worked full-time before I started Gc-Maf, and still work full-time. If I add my driving time, I'm 12 hours busy/day, at least...
If you have any pending questions, just ask, I'll be glad to answer them.
Best wishes,
OS.
I started may 7 2010 with a weekly, full dose injection. From April 2011, I started bi-weekly until march 2012 and then I stopped Gc-Maf because I was getting worse. That started in fact end of december 2011 and I still think it has something to do with the combination of Vit-D, Gc-Maf, selenium and R-Alpha Lipoic Acid. Although my labs fully normalized at that moment, the relapse occured right after. I'm still experiencing the beginning of my illness. So, whatever caused this, I have the feeling either the latent virus woke up heavily, or I'm experiencing a new infection. And that can be only from contaminated Gc-Maf. There could be no other explanation for that.
