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Italian director of AIDS Immunopathogenesis disproves Yamamoto's claims on Gc-Maf

Overstressed

Senior Member
Messages
406
Location
Belgium
Hi,

I found this on an HIV-blog today, which is interesting reading. It's a letter from Prof. Guido Poli, the Italian Director of Aids Immunopathogenesis, accessible by -of what I understand- The Italian Society of Infectious Tropical Diseases. He gave permission to distribute the letter outside this Society.

This letter disproves the claims of Yamamoto's work on Gc-Maf. And not only that, he also pitches seriously into Ruggiero's et al. work on Gc-Maf. Please note that this all is with respect with HIV.

You can find the letter here:
http://hivbloghiv.blogspot.com/2012/04/weak-link-between-gcmaf-and-hiv.html

Best regards,
OS.
 

Daffodil

Senior Member
Messages
5,873
i always thought the Yamamato claims were likely untrue based on the exact same reasons given in this article...but i know of so many CFS patients improving on this compound, it must be helping the immune system in some way..

there are several HIV patients on other forums who have tried to cure themselves with GcMAF and failed.

perhaps it helps us because the replication rate of what we are infected with is very low compared with HIV, and our problem lies mainly with integrated virus..?
 

Overstressed

Senior Member
Messages
406
Location
Belgium
i always thought the Yamamato claims were likely untrue based on the exact same reasons given in this article...but i know of so many CFS patients improving on this compound, it must be helping the immune system in some way..

there are several HIV patients on other forums who have tried to cure themselves with GcMAF and failed.

perhaps it helps us because the replication rate of what we are infected with is very low compared with HIV, and our problem lies mainly with integrated virus..?

Nobody knows what Gc-Maf does, there are several hypothesises, but no scientific proof. Lately, I have the feeling it speeds-up my illness, which is a bad thing. But on the other hand, my iron has come back nearly a year ago, to normal levels. Perhaps it has nothing to do with Gc-Maf, who knows. The problem is we don't have a viral load test, but people infected with HIV have them, and I know from people their viral load has gone up, while their nagalase went down. So, nagalase doesn't seem to be very reliable, if you ask me.

As Dr. Bradstreet mentioned, Gc-Maf works on the calcium channels, perhaps. I'm just quoting him, not that I have any clue of what that means.

Best regards,
OS.
 

Daffodil

Senior Member
Messages
5,873
hi OS.....maybe it helps only temporarily...it clearly does something good for at least a while.....for some people, that is....:-/

so...i thought you did kind of well on gcmaf? sorry my fog is bad
 

Overstressed

Senior Member
Messages
406
Location
Belgium
hi OS.....maybe it helps only temporarily...it clearly does something good for at least a while.....for some people, that is....:-/

so...i thought you did kind of well on gcmaf? sorry my fog is bad
Hi Daff,

well, until beginning of this year I was doing ok, but then I got instantly worse than I ever was before. I always had very bad tinnitus in my left ear, now my right ear starts buzzing. That's just horrible. I can stand pain, but this buzzing in my ear, I can't... I have lots of pain in my groin now, and my hips ache too. And since two weeks I'm on Gc-Maf back, and my neck and back hurt so much that I had to stay home from work. It's no coincidence I think, it started together with my Gc-Maf. Also, it's no coincidence that the urologist specialist I mentioned before, said that people with agressive prostate cancer have neck pain, lower back pain and also groin pain. Whatever Dr.Mikovits and Silverman found, it makes sense to me. Very much.

Take care,
OS.
 

Daffodil

Senior Member
Messages
5,873
i agree. everything mikovits and silverman said made so much sense, i cannot let it go. it just HAS to be some gammaretrovirus. i am so sickened about everything....all the uncertainty...not knowing who is telling the truth. how can one live like this?

OS....yours is not the first story i have heard where people improve for about a year and then relapse. but many are not relapsing. maybe once the nagalase is low enough you have to begin maintenance doses??? may i ask what dose you are taking?

maybe i should start testing nagalase.....
 

Daffodil

Senior Member
Messages
5,873
hi again OS...i see you already told me you take injections every other week now, right?

so you did well for how long before you started to feel bad again? did everything come back..even brain fog?

sorry..i cannot remember a thing!


the article says GcMAF could induce a systemic inflammatory syndrome.
 

globalpilot

Senior Member
Messages
626
Location
Ontario
i always thought the Yamamato claims were likely untrue based on the exact same reasons given in this article...but i know of so many CFS patients improving on this compound, it must be helping the immune system in some way..

there are several HIV patients on other forums who have tried to cure themselves with GcMAF and failed.

perhaps it helps us because the replication rate of what we are infected with is very low compared with HIV, and our problem lies mainly with integrated virus..?
I only know of 2 and both are doing several things besides GCMAF such as focusing on teh gut and chelation. On the other hand, I know of several who healed without GCMAF.
 

Overstressed

Senior Member
Messages
406
Location
Belgium
Hi Daff,

no problem, not remembering things is no new symptom :) I started may 7 2010 with a weekly, full dose injection. From April 2011, I started bi-weekly until march 2012 and then I stopped Gc-Maf because I was getting worse. That started in fact end of december 2011 and I still think it has something to do with the combination of Vit-D, Gc-Maf, selenium and R-Alpha Lipoic Acid. Although my labs fully normalized at that moment, the relapse occured right after. I'm still experiencing the beginning of my illness. So, whatever caused this, I have the feeling either the latent virus woke up heavily, or I'm experiencing a new infection. And that can be only from contaminated Gc-Maf. There could be no other explanation for that.

Since two weeks, I started Gc-Maf again, on a weekly basis for now. Still full dose. Brain fog came back indeed, but is somewhat better now. Despite the relapse, there are still things that remain improved, like my intolerances and energy-wise. I had also again systemic candida, my hands were full of blisters. In that sense, Gc-Maf is amazing because as soon as I started it, they were wiped away in a matter of a day.

If it's systemic inflamamtory syndrome, then that's very bad news for me. At least it could explain the speed-up of my illness as I'm experiencing right now.

Take care,
OS.
 

Daffodil

Senior Member
Messages
5,873
well i dont like this at all. OS....cant you ask demeirleir why this happened? he has given it to hundreds by now. was he your doctor?

if every little gain that we wait months for can be wiped out in a year or 2, whats the point?

we will never be free until they find out what is causing this. ugh
 

Overstressed

Senior Member
Messages
406
Location
Belgium
Hi Daff,

well, I don't think Gc-Maf is a cure. If it's handling the virus in some way, it gets not fully eradicated. The everlasting problem with the latent virus ? Who knows? Does it do anything at all towards viruses ? Don't know, my labs on EBV, CMV are not changing. It probably will take time, but since the buzzing in my ear expanded to my r-ear too, and it looks like EBV is responsible for that, I doubt Gc-Maf does really something to my Herpes-viruses. You would expect the antibodies go down after a while. Perhaps IgG antibodies take more time? You carry them during your whole life, most likely, but eventually, they have to go down.

Even if they find what its causing this -and I'm pretty sure its a retrovirus- there's nothing to do about that. At best, HIV has some ARVs that suppress the virus, and that's it. No cure. The only man that was found cured, the so called "Berlin patient", seems to be relapsed. They've found back HIV in his blood. At this moment, there's a debate among scientist, some say he's infected again, some say the virus had never been fully eradicated. If that's the case, this is a new milestone, a milestone in the disaster of HIV-research. Decades of extensive research, money and the only thing there is, is meds that quietly tell the virus to go to sleep and have a rest. I'm sorry for being so cynical...

For your information: I'm not a patient of KDM.

Take care,
OS.
 

Daffodil

Senior Member
Messages
5,873
OS.....i have also been reading about the new Berlin Patient controversy. my doctor never really believed it was eradicated. anyway, he has a functional cure....

i know we cannot be cured, but after 20 yrs. i was hoping for some long term relief.

so after all that, your herpes viral titres didn't even move? i am surprised.

i am getting to the point that feel insane that i keep drumming up hope lol
 

Sushi

Moderation Resource Albuquerque
Messages
19,934
Location
Albuquerque
Hi OS,

My reactivated EBV has gone down considerably. I wonder if the Nexavir that I take also helps with this--it is supposed to.

Best wishes,
Sushi
 

Overstressed

Senior Member
Messages
406
Location
Belgium
Hi OS,

My reactivated EBV has gone down considerably. I wonder if the Nexavir that I take also helps with this--it is supposed to.

Best wishes,
Sushi
Hi Sushi,

Let me start by saying that I'm so happy you're doing well, and you have the proof of it. My titres did indeed move, but in the wrong direction, it went up, not much, but it didn't went down for sure. The nexavir might be making the difference, and/or the LDN ?

On the other hand, I'm surprised your titres went down so quickly, it means your viral load went down instantly. Otherwise your IgG stays up for a whole while. It would be interesting to know what is making the difference, perhaps your genetics plays also a role? Or maybe something different: perhaps your disease is not mine, or the cause is totally different ? The longer it goes, the more questions pop-up, the less answers one has. I can't say it enough: being ill for only 5 years, I have so much respect for you all, going through all this for a long long time, for the most of you. RESPECT!

With the recent 'Berlin-patient' debate, I'm losing hope there will be a sterilizing cure while I'm still alive. Jemal's signature says it all: hope is the last to die...

Best wishes to you all,
OS.
 

Daffodil

Senior Member
Messages
5,873
Hi Os. I am not sure I really ever believed there would be a sterilizing cure in the near future but it is a hard dream to let go of, for sure.

maybe you are supposed to stop the gcmaf once your nagalase goes below 0.62 or lower the dose a lot or something....

did you ever have your nk cell function tested?
 

Daffodil

Senior Member
Messages
5,873
OS.....maybe it would be better to treat your herpes viruses before restarting gcmaf? some docs are doing that.

that is, if you haven't already
 

anniekim

Senior Member
Messages
779
Location
U.K
I only know of 2 and both are doing several things besides GCMAF such as focusing on teh gut and chelation. On the other hand, I know of several who healed without GCMAF.
Hi globalpilot, when you say you know of two people, are you referring to people with HIV or M.E? Many thanks