I wanted to share my thoughts as the year ends, it's been a bad one for me, the first one of my illness and finally get to see a specialist next week to figure out what I've got- (so far, it's a self diagnosis)
As my health declines over the months, as the photosensitivity prevented me to see the summer, as the headaches are pounding as I talk, I have gradually resigned myself to stay home, and have isolated myself a bit more each day, week, months.
I rarely phone out anymore, since it's gives me a hedache and in the same time my friends stopped calling. And beside, I haven't got news, other than aches, pains, and new symptoms. One old friend is actually scared to visit because it might be "catchy". (she is actually a nurse) What do you say to that-
I think this is the most depressing part of my illness- and it feels endless. It is accompanied by the lack of understanding from doctors and people from work and people that think I should get off my butt and go back to work.
ETA: And then what happen if you want to get out of the isolation but you only exacerbate the symptoms, then you don't try anymore in FEAR of getting into a crash?
My question to you is how do you cope as the months go by and as the illness does its hurts, with the lack of social contacts?
As my health declines over the months, as the photosensitivity prevented me to see the summer, as the headaches are pounding as I talk, I have gradually resigned myself to stay home, and have isolated myself a bit more each day, week, months.
I rarely phone out anymore, since it's gives me a hedache and in the same time my friends stopped calling. And beside, I haven't got news, other than aches, pains, and new symptoms. One old friend is actually scared to visit because it might be "catchy". (she is actually a nurse) What do you say to that-
I think this is the most depressing part of my illness- and it feels endless. It is accompanied by the lack of understanding from doctors and people from work and people that think I should get off my butt and go back to work.
ETA: And then what happen if you want to get out of the isolation but you only exacerbate the symptoms, then you don't try anymore in FEAR of getting into a crash?
My question to you is how do you cope as the months go by and as the illness does its hurts, with the lack of social contacts?