Is ME/CFS caused by cellular & organelle membrane dysfunction?

[Rufous McKinney]

I guess it didnt help u then

This was in the way back. I think we decided just eat an egg.

I used to consume any number of things I no longer consume but no clue why.

Probably the mere fact this is soy related, I tend to try to avoid soy.

 

[Rufous McKinney]

I guess it didnt help u then

When I ended extreme Vegan (EHRETS muscousless Diet circa 1922)..not very alive, at twenty- I recall I was doing plain yogurt with dates and lecithin.

I don't buy dates, hardly, either.

I sure did eat alot of vegetables and brown rice cooked in a wok.

 

[LINE]

Bought soy lecitin supplement today, contains all the good stuff.

I seem to do better with the Sunflower rather than the soy based.

 

[Murph]

anecdote: I bought lineoleic acid recently and added it to my mix.

I bought it after seeing various lineoleic acid derivatives were low in the mce/cfs cohort in a metabolomic study, and reading a study where supplementing it was recommended. The main advocate is Basant Puri, a professor of lipid neuroscience. https://me-pedia.org/wiki/Basant_Puri

Taking it coincided with a period where felt like I'd dropped about 40 IQ points. I stopped taking it!

it's an omega 6, i got it in evening primrose oil.

 

[Consul]

@LINE what total dose of lecithin did you use per day?

 

[LINE]

@LINE what total dose of lecithin did you use per day?

I started off with the higher quality PC from BodyBio which is more concentrated than I use today which is Sunflower Lecithin from NOW. I use 4 of the NOW brand and I am thinking that I may have used 1 or 2 of the BodyBio.

 

[Consul]

which one you got?
(i also ordered the body bio pc, coming in probably 2 weeks)

can you please keep your experiences periodically posted how its working out for you? status a few weeks later.
i'd really interested if it works out.

No effect yet i think

 

[linusbert]

No effect yet i think

damn.
do you take with carnitine?

for me i think it worsens my asthma. could also be the soy.

 

[Consul]

damn.
do you take with carnitine?

for me i think it worsens my asthma. could also be the soy.

No but i had a period where i are 3eggs per day earlier on and i used carnitine then with no effect. I think the egg plume is considered lecitin just like the supplements.

 

[Oliver3]

No but i had a period where i are 3eggs per day earlier on and i used carnitine then with no effect. I think the egg plume is considered lecitin just like the supplements.

Black seed oil in my experience strengthens tissue but also sort of makes it less flexible.
At the risk of giving too much info I'd like to share smthg that all doctors have told me is impossible but I promise it's what happened.
I'm late 40's. My connective tissue was looser. My eyes to the touch were getting soft, almost like hardish jelly. This is probs too much info but my anus was getting too " relaxed" not prolapsed but I thought another ten years it might.
On the plus side, my penis was stretching longer every year. Another thing doctors wouldn't believe.
I started taking black seed oil because " it cured everything but death".
I drank it, applied it to my penis to try n strengthen it.
Immediately on taking, black seed reversed my POTS. Not totally, but I didn't need to worry about walking about for longish periods of time. That in turn improved the fight or flight problems.
It went great. I wasn't cured but some much better.
After about two months if this, after one night if applying this to my torso, I got a feeling of tightness in my groin. Over the next few days, my anal looseness completely reversed but my penis size also reversed.
What the hell happened??? It seems it was the huge amount of omega six I'd applied.
I'm embarrassed writing this so I hope people appreciate the honesty, rather than seeing this as me being wierd.
It's like the tissue was strengthened but made less flexible.

 

[linusbert]

Black seed oil in my experience strengthens tissue but also sort of makes it less flexible.
At the risk of giving too much info I'd like to share smthg that all doctors have told me is impossible but I promise it's what happened.
I'm late 40's. My connective tissue was looser. My eyes to the touch were getting soft, almost like hardish jelly. This is probs too much info but my anus was getting too " relaxed" not prolapsed but I thought another ten years it might.
On the plus side, my penis was stretching longer every year. Another thing doctors wouldn't believe.
I started taking black seed oil because " it cured everything but death".
I drank it, applied it to my penis to try n strengthen it.
Immediately on taking, black seed reversed my POTS. Not totally, but I didn't need to worry about walking about for longish periods of time. That in turn improved the fight or flight problems.
It went great. I wasn't cured but some much better.
After about two months if this, after one night if applying this to my torso, I got a feeling of tightness in my groin. Over the next few days, my anal looseness completely reversed but my penis size also reversed.
What the hell happened??? It seems it was the huge amount of omega six I'd applied.
I'm embarrassed writing this so I hope people appreciate the honesty, rather than seeing this as me being wierd.
It's like the tissue was strengthened but made less flexible.

if you had put a product link as well i'd believe you are a snake oil salesmen.

i have absolutely no idea whats going on with your tissues.
but i know that penis can get bigger and smaller depending on sexual activity, hormon levels and nutritional status. high dose Vitamin D is rumored to make penis longer like 1-2 inch.
if you do not masturbate for longer it also gets a little bigger, until you do. maybe there is a correlation? certain practices like no ejaculating while masturbating can also have that effect.
do you do any penis exercises? massages? PE-practices?

but i dont think your tissue change from one day to another. i'd rather believe its either a muscular thing that happend or endothelial.

 

[Oliver3]

Honestly this happened and I can only think the high omega six ratio stiffened my eyes back up too as well as everything else.
The penis thing. It had been getting bigger for years. I was getting worried because although it was, excuse me, getting very big, the tissue was stretching. I didn't know how that would end up. I could stretch it out manually when non erect too. It was freaking me out.
I could only think it was some kind of ehlers danlos loss of collagen but it just became so elastic.
After I started to apply black seed oil there, at first it made it even bloody bigger, but I seemed to reach a threshold, my groin became really tight. And it pulled in. It felt like the chambers were minituarised.
I couldn't believe that my anus tightened to like fort Knox type proportions! It's still hard to move my bowel easily. Very painful. That was NEVER an issue before
Please, take this seriously. I've been a bit traumatized by it. It felt like my nether regions would eventually fall to pieces!!
Then the opposite has happened. It changed within the space of three days and was definitely the oil.
This tightness there now has reduced my ability to orgasm and relieve myself.
Like I say, I'm shocked and traumatized.
And no one sodding believes me!! I know my body very well, as I'm sure we all do and you all know what its like to not be believed.
I wish I could reverse this slightly as sometimes it can still get very uncomfy.
Any ideas would be greatly appreciated.
Please don't troll

 

[Oliver3]

if you had put a product link as well i'd believe you are a snake oil salesmen.

i have absolutely no idea whats going on with your tissues.
but i know that penis can get bigger and smaller depending on sexual activity, hormon levels and nutritional status. high dose Vitamin D is rumored to make penis longer like 1-2 inch.
if you do not masturbate for longer it also gets a little bigger, until you do. maybe there is a correlation? certain practices like no ejaculating while masturbating can also have that effect.
do you do any penis exercises? massages? PE-practices?

but i dont think your tissue change from one day to another. i'd rather believe its either a muscular thing that happend or endothelial.

Because this seemed to effect the vasculature, it , and because it responses so quickly to the oil, I'm scared I have VEDS.
There's something not right.
I feel my heart beat all over my body. I had an early onset varicose vein in my leg and I'm pretty see through vein wise on my chest.
The eds specialist I saw said I didn't have eds but this has terrified me if I'm honest.
I hope crispr comes up with smthg to strengthen tissue and collagen.
No the penis lengthening had nothing to do with those things. It just kept getting stretched out...like anything losing collagen I guess

 

[Oliver3]

As an aside, if I went veggie, same reaction, much looser chambers for blood to fill. Looser anus.
This is excruciatingly embarrassing to say, I was hoping maybe there were other sufferers

 

[Oliver3]

https://www.nutraingredients-asia.c...d-6-ratio-is-key-to-protecting-cell-membranes

They talk about tissue stiffening from wrong omega ratios here. I'm pretty sure that's what's happened. It's somehow tightened my tissue.

 

[Oliver3]

Thanks!

If this theory is correct then people need different treatments i think, all depends on whats keeping your membranes from being in adequate shape. And thats sort of what we hear as well from pwme that recovered, they have a wide range of approaches from rituximab to circadian rythm interventions.

Could it be the cell is like the tissue. Compromised from birth?
I tend to think if the "think skinned" analogy our cells like or tissues are not strong. This akso translates mentally and spirituality. We have problems with boundaries and sensory issues. Surely the tissue type came first?

 

[Oliver3]

if you had put a product link as well i'd believe you are a snake oil salesmen.

i have absolutely no idea whats going on with your tissues.
but i know that penis can get bigger and smaller depending on sexual activity, hormon levels and nutritional status. high dose Vitamin D is rumored to make penis longer like 1-2 inch.
if you do not masturbate for longer it also gets a little bigger, until you do. maybe there is a correlation? certain practices like no ejaculating while masturbating can also have that effect.
do you do any penis exercises? massages? PE-practices?

but i dont think your tissue change from one day to another. i'd rather believe its either a muscular thing that happend or endothelial.

https://www.insider.com/covid-penis-man-said-disease-shortened-penis-size-vascular-problems-2022-1

 

[linusbert]

No the penis lengthening had nothing to do with those things. It just kept getting stretched out...like anything losing collagen I guess

i cannot give you any tissue advice because i know not much about collagen and connectivity issues.
sorry about that. maybe the other folks here know more about this.

but i can give you penis advice, because i have some experiences too.
i would leave the area down below alone for a month or so. no masturbation. no kegel exercises, no reverse kegels etc. no stretching. no stretcher. no vacuum pump, just nothing. let the whole area regenerate. over exertion can happen. affecting muscles and tissues.

i am not saying this is the cause of your tissue problems. i am saying give it a rest, not overcomplicate things by having too many factors influence the situation!

those areas down below are all muscle related, and too much can either weaken the muscle or cramp/stiff it up. if muscles down there get tight it has immediate effect on all tissues around. it can make tissues move outside or inside. feel loose.
i have sometimes a weak anus, feeling like things could slip and sometimes it feels so tight that stuff doesnt move out. in my case its all muscle.


regarding your varicose veins. vitamin k2 mk4/mk7 can help with that if the issue is calcium related. maybe it even helps with the tissues.

also copper and vitamin C are directly related to tissue. a deficiency in both can make bad connectivity tissue.
i would supplement both if you can tolerate this.

arginine is related to increased NO production, also has effects down there.


i can say nothing about your theory of omega 3:6 ratio. ive never read anything about it, i dont know. all my problems are muscle related therefore my suggestions come from a muscle basis.

 

[Oliver3]

i cannot give you any tissue advice because i know not much about collagen and connectivity issues.
sorry about that. maybe the other folks here know more about this.

but i can give you penis advice, because i have some experiences too.
i would leave the area down below alone for a month or so. no masturbation. no kegel exercises, no reverse kegels etc. no stretching. no stretcher. no vacuum pump, just nothing. let the whole area regenerate. over exertion can happen. affecting muscles and tissues.

i am not saying this is the cause of your tissue problems. i am saying give it a rest, not overcomplicate things by having too many factors influence the situation!

those areas down below are all muscle related, and too much can either weaken the muscle or cramp/stiff it up. if muscles down there get tight it has immediate effect on all tissues around. it can make tissues move outside or inside. feel loose.
i have sometimes a weak anus, feeling like things could slip and sometimes it feels so tight that stuff doesnt move out. in my case its all muscle.


regarding your varicose veins. vitamin k2 mk4/mk7 can help with that if the issue is calcium related. maybe it even helps with the tissues.

also copper and vitamin C are directly related to tissue. a deficiency in both can make bad connectivity tissue.
i would supplement both if you can tolerate this.

arginine is related to increased NO production, also has effects down there.


i can say nothing about your theory of omega 3:6 ratio. ive never read anything about it, i dont know. all my problems are muscle related therefore my suggestions come from a muscle basis.

Hey there, thanks for the reply.
Luckily the varicose vein got removed but I do take what you've suggested so good to know it helps.
Regarding the manhood thing. To be clear. It was just stretching from being alive. Having a girlfriend at the time. I was doing any excercise. When I meant stretchy. It literally changed consistency. It became very stretchy. I could pull it up to my chest virtually in the end...it wasn't like that at 21!!!!
Drinking and applying black seed definitely was the change. At first I just drank it and was amazed at the huge improvement in pots. It has thymoquinone in it which I presumed was the part stabilizing my POTS.
When I applied it to my penis, about three months in, it took about three days and boom. Huge feeling of tissue stiffening ( not in that way).
As I said the anus contracted. Which was great til it became painful. And the penis is smaller than it was. The base has changed and the orgasm too. But there is not much I can do. Perhaps over time it will loosen again.
Thanks for taking this seriously, I'm still too young to give up on sex abd this has affected me a fair bit

 

[Oliver3]

Hey there, thanks for the reply.
Luckily the varicose vein got removed but I do take what you've suggested so good to know it helps.
Regarding the manhood thing. To be clear. It was just stretching from being alive. Having a girlfriend at the time. I was doing any excercise. When I meant stretchy. It literally changed consistency. It became very stretchy. I could pull it up to my chest virtually in the end...it wasn't like that at 21!!!!
Drinking and applying black seed definitely was the change. At first I just drank it and was amazed at the huge improvement in pots. It has thymoquinone in it which I presumed was the part stabilizing my POTS.
When I applied it to my penis, about three months in, it took about three days and boom. Huge feeling of tissue stiffening ( not in that way).
As I said the anus contracted. Which was great til it became painful. And the penis is smaller than it was. The base has changed and the orgasm too. But there is not much I can do. Perhaps over time it will loosen again.
Thanks for taking this seriously, I'm still too young to give up on sex abd this has affected me a fair bit

I meant wasn't doing any excercise