juniemarie
Senior Member
- Messages
- 383
- Location
- Albuquerque
That I could try. Nothing fancy that involves a lot of tests or Dr's. I am new and have been reading here on the site for a few days, and I must say I am amazed at the amount of knowledge you folks have. Also how well everyone interacts with one another and how the over all feeling of this site is compassion......for each other's concerns. You seem like a big friendly family.
I have not put my story up yet as I dont have enough energy right now. I change rapidly from day to day, week to week, and the last couple of days have been mostly in bed.
Most of what I read goes way over my head, even without the brain fog.
Also, I get confused about what I can do to help myself feel better..........that I can afford. So much conflicting info. Then there is the issue of what works for one may not work for another.............may actually make another worse.
What I have(I think) is CFS. Have had it as far as I know for about 14 yrs. At first I ran around form one doc to the next getting lots of test and spent way to much money, which led to 0. Then I decided to just go with the flow.
I felt better in that I was not spending all my money for nothing, I had extra energy for my day to day life, I got to think about and learn and involve my self in things other than CFS.
I am a vegetarian , and read somewhere that if you are a vegetarian you can forget about getting well.
I take nothing as far as supplements go except Vit C and D3
In keeping with my go with the flow mentality, I treat symptoms as they come.....if I can.
So, I have fatigue, I take adderall. I cant sleep, I take antihistamine.
I would like to try other supplements, that are affordable and easy to get, but would like some suggestions.
I have the reduced form of CoQ 10, Ubiquinol, but am not sure if I should take it because of all the conflicting reports, both from the top docs and people with CFS.
The heart doc talked me into taking a statin, and I had probably the worst crash I have ever had in the entire time I have had CFS. It was truly horrible. I thought this is the end for me. Felt like I was going to die.
Protein is also a problem for me. Again reading conflicting evidence about eating beans,lentils, whey, which would normally be my main sources.
When I get too confused, I tend to freeze up and do/take nothing.
Anyway these are the things I need help with and any suggestions will be greatly appreciated.
I have not put my story up yet as I dont have enough energy right now. I change rapidly from day to day, week to week, and the last couple of days have been mostly in bed.
Most of what I read goes way over my head, even without the brain fog.
Also, I get confused about what I can do to help myself feel better..........that I can afford. So much conflicting info. Then there is the issue of what works for one may not work for another.............may actually make another worse.
What I have(I think) is CFS. Have had it as far as I know for about 14 yrs. At first I ran around form one doc to the next getting lots of test and spent way to much money, which led to 0. Then I decided to just go with the flow.
I felt better in that I was not spending all my money for nothing, I had extra energy for my day to day life, I got to think about and learn and involve my self in things other than CFS.
I am a vegetarian , and read somewhere that if you are a vegetarian you can forget about getting well.
I take nothing as far as supplements go except Vit C and D3
In keeping with my go with the flow mentality, I treat symptoms as they come.....if I can.
So, I have fatigue, I take adderall. I cant sleep, I take antihistamine.
I would like to try other supplements, that are affordable and easy to get, but would like some suggestions.
I have the reduced form of CoQ 10, Ubiquinol, but am not sure if I should take it because of all the conflicting reports, both from the top docs and people with CFS.
The heart doc talked me into taking a statin, and I had probably the worst crash I have ever had in the entire time I have had CFS. It was truly horrible. I thought this is the end for me. Felt like I was going to die.
Protein is also a problem for me. Again reading conflicting evidence about eating beans,lentils, whey, which would normally be my main sources.
When I get too confused, I tend to freeze up and do/take nothing.
Anyway these are the things I need help with and any suggestions will be greatly appreciated.