Thanks Firestormm, I haven't seen those discussions. It sounds like quite a complicated drug. We definitely need these trials to happen.
I think ME is a complicated (little understood) and heterogeneous condition, Kate. Bottom line is that we might all share similar problems biologically - but I think we need to establish what they are and how they might be helped with this treatment first. And maybe as good a place to start as any is with those who have been treated and responded poorly. I wouldn't really know how to go about it - but I do appreciate people returning to share their experiences good or bad. It really helps