Invest in ME Biomedical Research Colloquium 2017 #BRMEC7

Jo Best

Jo Best

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PR thread: http://forums.phoenixrising.me/inde...timistic-at-2017-iime-conference-video.52339/

Dr. Ron Davis, Director of the OMF Scienific Advisory Board and Director of the Stanford Genome Technology Center, conveys his excitement about the latest progress being made in ME/CFS research, especially towards discovering treatments. Speaking from the recent Invest in ME (IiME) conference in London, UK, Dr. Davis discusses how ME/CFS research is growing, enthusiastic, and most importantly, focused on how we can make an impact on patients.
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F

FMMM1

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Dr. Nahle with Dr. Ron Davis of Stanford University and Open Medicine Foundation

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Dr. Nahle with ME/CFS leading expert Dr. Nancy Klimas of Nova Southeastern University

Nancy's team are looking for genetic data

what is the cost of whole genome testing?

anyone got a contact (email) for Dr. Nancy Klimas/the team running the genetic study?
 
Jo Best

Jo Best

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FMMM1 said:
what is the cost of whole genome testing?

anyone got a contact (email) for Dr. Nancy Klimas/the team running the genetic study?
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The contact email is: MECFSGenes@nova.edu

From the webpage: http://www.nova.edu/nim/research/mecfs-genes.html
  1. How does this study work?Interested individuals must email MECFSGenes@Nova.edu. Please state whether you have ME/CFS or are a Healthy Control. You will receive a personalized link, within 2-3 business days, to a secure web based platform, RedCap, which is how the study is conducted. Once you complete the instructions, you will click on the link and complete a Pre-Screening Questionnaire consisting of 11 questions. If you qualify for the study, you will be directed to a survey queue with an additional survey and an area to upload your raw genetic data.
    PLEASE NOTE: The email you receive WILL be encrypted and you WILL have to follow the instructions found here in order to proceed.

    7. I completed my genetic testing from a website. Which companies do you accept?At this time, we are only accepting raw genetic data from 23andme.com and dna.ancestry.com
A quick look at the websites today shows these prices:

$99 r(educed to $69 til August 15th) on https://www.ancestry.com/dna/

and two options on https://www.23andme.com/ of $99 for 'Ancestry Service' or $199 for 'Health + Ancestry Service' (USA) but the prices may depend on what you're country in.
 
Binkie4

Binkie4

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I have a vague memory from possibly a year ago ( very helpful!) that the OMF would be introducing a genome testing facility in the near future.

Anyone remember anything about this?

@Ben Howell @JaimeS
 
Snowdrop

Snowdrop

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If I'm thinking of the same thing there was someone named Laura? who @Ben Howell mentioned was working on a blood test that was due around end of July (now past).
The issues for delay were one of transporting the samples I think.
 
slysaint

slysaint

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Snowdrop said:
If I'm thinking of the same thing there was someone named Laura? who @Ben Howell mentioned was working on a blood test that was due around end of July (now past).
The issues for delay were one of transporting the samples I think.
Click to expand...
Ben Howell said:
One of the metabolomic tests that Laurel Crosby is working on at Stanford is able to be used by anyone worldwide, providing you can get a blood draw and centrifuged. This is still being tested before being made available.
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posted here
http://forums.phoenixrising.me/inde...-17-research-update.49749/page-11#post-821701
 
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