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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My IC has been made about 100 times worse by an idiotic doctor who stretched my bladder (hydrodistension) to 'cure' it - ever since the pain has been incredible & stops me sleeping - no painkiller touches it
What a good thing you cancelled that op helsbells, it's a barbaric procedure. I hope your pain levels are not so bad now.
I think a plumber would have been more competent
Min, I'm sorry you went through that procedure and it caused even more problems. Sounds horrible.
I think one of the reason I didn't think I have urgency/frequency problems is because I don't drink enough fluids to begin with, I am likely dehydrated most of the time. It's possible subconsciously that I've been avoiding fluid intake to prevent running to the bathroom all the time. I had a tilt table test yesterday (((that was no fun!!!))) and the doc was really on me about such little fluid intake and how that will make dysautonomia worse. Today I've been drinking water, running to the bathroom and 5 mins later I have to go again.
I did get in a few small pieces of tomato the other night, at a restaurant, and didn't have pain. So far so good.
I might have misread this vitamin C comment. But if it meant it worsens your symptoms, try
buffered vitamin C it made all the difference in the world for me.