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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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interstitial cystitis

  1. Pyrrhus

    Interstitial Cystitis and ME/CFS

    Interstitial Cystitis and ME/CFS Here's an informational pamphlet from the UK ME Association: https://meassociation.org.uk/product/interstitial-cystitis-and-me-cfs/ And here are related discussions: Interstitial Cystitis? (2010)...
  2. C

    Extremely ill after 3 months cancer treatment. Bedbound again.

    So I've had an ME diagnosis for at least 15 years. I became full blown chronically ill when I was only a teenager and I can't pinpoint anything that caused this, over the years I just got worse and worse. I ended up bedbound in my early 20's and spent most of my 20's resting, pacing, sleeping...
  3. Hip

    POLL: Did your interstitial cystitis or overactive bladder appear after starting a new sexual relationship (it may be due to catching a virus)?

    This poll is for anyone who has interstitial cystitis (IC), also called painful bladder syndrome, or the similar condition of overactive bladder (OAB), also called irritable bladder. Both IC and OAB produce strong urinary urgency resulting from uncontrollable nervous contractions of the...
  4. Annikki

    Virus found in patients with a bladder autoimmune disease called Interstitial Cystitis

    New research shows that a DNA virus is implicated in the debilitating autoimmune disease, Intersititial Cystitis. Interstitial cystitis is frequently comorbid (occurs in tandem with) Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis, so this is worth checking out: A Case Control Study...
  5. Sherlock

    Brain white matter abnormalities in female interstitial cystitis/bladder pain syndrome: A MAPP Netwo

    Just stumbled on this J Urol. 2015 Feb 21 http://www.ncbi.nlm.nih.gov/pubmed/25711200 :
  6. place

    interstitial cystitis

    I have looked in the forums and there is no thread for this topic alone.... I have been battling a bad case of ic . It's been 4 weeks of off and on symptoms. I can't shake it. Tested negative for uti. I have tried fish oil and Advil and rest but as soon as I start to pick up my normal...
  7. K

    Interstitial Cystitis?

    I know quite a few people on this forum have Interstitial Cystitis and I was wondering must you always have frequent urination to have this? I've had some different/intense pelvic pain for about 1 1/2 years now and I read about IC early on and thought that wasn't it, now I'm not so sure. I know...