Interstitial Cystitis and ME/CFS


Senior Member
U.S., Earth
Interstitial Cystitis and ME/CFS

Here's an informational pamphlet from the UK ME Association:

UK ME Association said:
We discuss Interstitial Cystitis (IC) which is a very distressing condition that seems to be more common in people with ME/CFS. It is a poorly understood bladder condition that causes uncomfortable symptoms including pelvic pain.

And here are related discussions:

Interstitial Cystitis? (2010)

interstitial cystitis (2013)

Brain white matter abnormalities in female interstitial cystitis/bladder pain syndrome (Farmer et al., 2015)

A Case Control Study Reveals that Polyomavirus Is Significantly Associated with Interstitial Cystitis (Winter et al., 2015)
I"m bumping this thread: BUMP BUMP

I'm having alot of IC these days. Daytime, naps,resting.. my bladder is not OK. And hasn't been for a very long time.

I am ordering: SAGA PRO

I got this several years ago, ordered it online it was not in stores. Icelandic Angelica. (ANGELICA ARCHANGLICA)

(capitalized to stop my spelling corrector)

the root.

My bladder is sort of worse lately, after another acute gastro event last month.

So this is a Nordic herb. My chinese herbalist was frankly distressed when he heard I had obtained it.

Its outside that system, plus its the root.

Well, I used it and it seemed VERY helpful.

So I'm going to experiment trying this again, and will report back.