I learned of Justin's passing approximately 1 week or so ago. I was absolutely horrified that he was taken at such a young age. No Parent should ever have to witness the 'wrath' this disease takes on their child.
Having experienced the up's/down's of ME for the past 25+yrs. ... seemings much longer, I decided to check the 'blogs' and find out about this mystery man, whom I've never had the opportunity of communication.
From my search I found out that not only did Justin30 reside in the same city, but resided less than 2 miles up the road. I feel awful for not knowing and now it's too late. Could I have 'helped'? .... probably not, but possibly. Most would agree, life is precious and far too short.
Many of you at Phoenix Rising should be proud of your ongoing sharing (when able) with Justin and I truly believe it helped ‘ease’ the pain, during his battle with this horrific disease.
May his beautiful soul R.I.P and light.
I attended Justin Noble's Service this afternoon and it was INDEED a "CELEBRATION of his LIFE"!
I am unaware if anyone from Phoenix Rising was in attendance to give a proper report, but just in case thought I would share the following. I was ill for 3 days and today is my first day up and out. I apologize in advance as this will be less than succinct but it's the best I'm able to do.
The Chapel was packed and surmise (by the sheer numbers standing in the entrance) that the adjacent large tent equipped with seating, audio/video and heated was every bit as full as the Chapel. Luckily, it was a dry day but very chilly.
Susan (Justin's mother) graciously met and seated each and every person herself. I had not met Susan before and I must say her greeting was as though being welcomed into her own living-room. What a 'rock' or 'true grit' (for those old enough to know) …. certainly indicative of the strength and warmth the 'Noble Family' bears.
Susan read a ‘Special Message’ to Justin. It was truly beautiful and heart wrenching! (cannot comment further – would be a heap on the floor requiring mega tissues).
Mike rendered a marvelous 'Celebration of Justin's Life'.
Mike and Kirsten (Justin's sister) had been dating overseas and it was time for Mike to meet 'the parents'. Justin was only 6 or 7 years of age at this time (Mike's first meeting), but having a great respect for one another a true-blue friendship quickly evolved. Mike pointed out a host of activities which Justin enjoyed from fish and aquariums to (sorry, memory) and how carefully he researched and was 'intensely devoted' to everything he took part in.
Many Phoenix Rising members possibly know of Justin's love for hockey. Apparently, Justin was an 'exceptional' hockey player. In his early teens Justin was chosen to go to Oregon. Justin declined the offer as his family took precedence and he hung up his professional boots for his pleasure only skates.
My apologies, my memory is fading fast. I am hoping a healthier ME person might impart better details or perhaps an audio of the Service might be made available for members.
There were five delightful and brave young men sharing stories of their departed friend.
Many of the stories were heart wrenching and it's beyond my comprehension how well these gentlemen spoke and stood tall throughout. Not all of the stories required a tissue. In fact, for the moment, please envision what ‘antics’, your best friend, school mate or co-worker might like to share? Hmmm, we all have a few of those, including the 'Don't Tell Mum & Dad', etc... . Many giggles and much loving laughter was obviously enjoyed!
There were numerous accounts of Justin's daily passion of fishing as well as the many frequented 'secretive' spots. One of Justin's fishing friends promised to to teach Justin's son, Jace, this 'art' so it could be passed down in future generations.
Yes, Jace and his mother (please forgive me for forgetting her name) attended the service and reception. Jace, without question is as 'cute' as you can imagine, sporting those huge round eyes, we all crave to have been born with.
For those Phoenix Rising members who might be wondering, Mike made it exceedingly clear, several times .... the formality of marriage had been delayed due to the birth of Jace and (again, my apologies) 'Jace's Mother' whom they dearly loved, would 'always be welcome' in their home.
Unfortunately, I was only able to attend the reception for a very short time. Those attending thoroughly enjoyed an enormous spread of delectable food and much banter.
Lastly, I wish to express my sheer amazement as to the unquestionable warmth and strength provided by this huge family among friends & relatives. I wish them the very best in all their future pursuits and with much peace and happiness.
Sincerely - JMadigan
Pls. Note: Many Thank You's go to Kina, a 'Volunteer Moderator' at Phoenix Rising, who came to my 'rescue' and made the above possible! It was an enormous task & cannot thank you enough Kina. Cheers - Jane
