In memory of Justin Noble - Justin30 on PR

[Comet]

I am so sad to hear this. He never stopped looking for answers. My heart goes out to his baby and to the rest of his family and friends. My deepest condolences. He will be in my thoughts.

 

[Mij]

I communicated with Justin through PM several times. He was so passionate and kind. I can't believe this

 

[Old Bones]

I am heartbroken. I have recently missed the passion of @Justin30 's posts, as they gradually reduced in frequency and number, and then disappeared. How sad that it is often only under such tragic circumstances that forum members can finally put a face to a name. Canada has lost one of its most outspoken advocates for change in how ME patients are recognized, and treated. And, Justin's social network has lost a wonderful son, father, family member and friend. May you rest in comfort, Justin, and find the peace you couldn't in the latter months of what was previously a joyful life, based on the photos we've been privileged to see on your Facebook page.

 

[ScottTriGuy]

Its worth pointing out that even though Justin is Canadian, his parents designated American ME research for donations.

It speaks to the lack of Canadian ME research.

And the failure of our health care leaders to knowingly allow the institutionalized and systemic psychosomatic bias against ME research and treatment to propagate.

Our health care leaders, like Health Minister Philpott, are responsible for maintaining this status quo and must be held accountable for their inaction.

As we see in Justin's posts, this bias impeded his ability to access appropriate testing and treatment in a timely manner and to be treated with dignity and respect by health care workers.

We will carry Justin's passion for change in our health care system forward in his memory and honour.

 

[Sushi]

I can't believe this. How can this happen so suddenly to someone we knew and cared for so much? So much a part of this community and then gone.... Justin touched us all--so many of us had private conversations with him and shared our hopes and frustrations. He and his family contributed so strongly to Missing Millions.

To remember him in a joyous moment, here is his picture with his child.

 

[Cheryl Benson]

no words, only tears

 

[Snowdrop]

Again. I am so terribly sorry to hear this. Such loss.
My condolences to J's family and friends.

 

[Nielk]

So sad to hear about this great loss. I read on Facebook about a Justin in Canada passing away, not realizing that it was @Justin30 on PR.

I too have enjoyed many of his comments on here. I didn't realize how young he was and that he had an infant son.

Heartbreaking.

 

[Kati]

I can't believe this. How can this happen so suddenly to someone we knew and cared for so much? So much a part of this community and then gone.... Justin touched us all--so many of us had private conversations with him and shared our hopes and frustrations. He and his family contributed so strongly to Missing Millions.

To remember him in a joyous moment, here is his picture with his child.

This photo was taken this year, and shows the invibility of the disease very well.

 

[Sushi]

I feel like the forum should observe a moment of silence in honor of Justin and his exceptionally brave fight. I know that is not really possible, but if anyone wants to come into the General Chat room and share their thoughts and feelings, we could do that.

 

[Gingergrrl]

I feel like the forum should observe a moment of silence in honor of Justin

Am not able to come to the chat room today but if you let us know when the moment of silence is, I definitely want to participate to honor Justin. Just let us know anything that we can do to help.

 

[TigerLilea]

I am so sorry to hear the news about Justin. I didn't realize that he lived here in Metro Vancouver.

 

[Sushi]

if you let us know when the moment of silence is, I definitely want to participate to honor Justin.

That is just a metaphor--I don't think there is a practical way to do it. But the chat room is available for those who wish to grieve together.

 

[Ysabelle-S]

How awful. He was only young, and he looks so happy with his baby boy. He deserved a long and happy life, and the chance to see treatment for this disease, and to see his son grow up. Condolences to everyone who knew him, especially his family.

 

[Gingergrrl]

That is just a metaphor--I don't think there is a practical way to do it. But the chat room is available for those who wish to grieve together.

Okay, and was not sure if maybe you were thinking that we all light a candle or do something at the same time in his honor. I agree it would be challenging with us all in different times zones but maybe for those in this thread, we could plan something for a future date.

 

[OverTheHills]

This is terrible news and like everyone I am upset by the tragic waste of another young life. That picture of him with his young son is very moving.

I am now worrying all the more that Bob has gone missing for the last month. Perhaps something awful has happened to him, perhaps there may be something we can do to help him. (I am very poorly today and cannot even find the thread about Bob's absence again).

If anyone reading this thread has Bobs contact details can they please check in with him and let us know.

OTH

 

[Undisclosed]

I have nothing to say except it's a tragic loss of a young father. I hate the 'In memory' forum in one way because of all the loss but in another way it's a testament that ME kills and the world needs to know this.

Dearest Justin, you made a difference and your untimely death will not be in vain.

 

[Undisclosed]

This is terrible news and like everyone I am upset by the tragic waste of another young life. That picture of him with his young son is very moving.

I am now worrying all the more that Bob has gone missing for the last month. Perhaps something awful has happened to him, perhaps there may be something we can do to help him. (I am very poorly today and cannot even find the thread about Bob's absence again).

If anyone reading this thread has Bobs contact details can they please check in with him and let us know.

OTH

Hello OTH, I have sent an email to Bob asking if he is okay. That's all I can do. I will post elsewhere if I hear back.

 

[AndyPandy]

Another heartbreaking loss. RIP Justin.

 

[OverTheHills]

Hello OTH, I have sent an email to Bob asking if he is okay. That's all I can do. I will post elsewhere if I hear back.

Thanks Kina,that is great [sorry to derail the thread - which should be about Justin]