Dear John,I registered on here for my brother Jeff, who some of you got to talk to him...
He will be missed more than words can say. I wish with all of my heart he would not of given up. I would do anything for one last hug from him, or an I love you, or a goodbye. His son Uriah is struggling too, and my wife and I are trying to help him any way we can.
Please...any of you who are struggling don't end your life. I know you think it is easy for me to say...but I have PLENTY of my own demons I fight on a daily basis... Jeff and I may of had a different "diagnosis but we are/were ALOT the same.
May you rest in peace Jeffrey, and now you are in a place where you don't have to hurt any longer! I love you more than I can explain and I miss my best friend!
Your brother John
I cannot assuage your suffering in any way; I know that well. I can only pray that it will ease somewhat .
But what I can say is that this illness is hell on earth; it is antithetical to life; life is movement, and this illness punishes young people for doing what life is, moving, even slightly moving..... (My 92 year old mother has more strength and energy and mobility than our sick family member who is young.)
There are no meds, as far as I know, that relieve the non stop flu feeling, sick feeling, toxic feeling, the weakness, the severe discomforts in the GI tract, and in other parts of the body. How much can a human being tolerate. Just imagine having a knife stuck in your back for years. That is the situation for the severely ill.
The governments of various countries simply have not seen the urgency in this extremely debilitating condition which strikes the young. They are guilty of not helping their citizens and allowing this nightmare to carry on by not funding enough research.
I thank you very much for writing. How kind! Please take care of yourselves, all of you. Bless you and your family.
Thank you