Daffodil
Senior Member
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i couldnt tolerate doxy due to severe diarrhea so i had to be put on minocycline instead :-/
In Belgium to see Dr de Meirleir
- Thread starter Valentijn
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Daffodil
Senior Member
- Messages
- 5,890
wow. yea there is something VERY wrong with my gut.
hopefully, the tasectan will help!
hopefully, the tasectan will help!
Little Bluestem
All Good Things Must Come to an End
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Fish oil on an empty stomach? 
My stomach is very difficult to upset. Even when very sick and badly needing to throw up, I just can't do itFish oil on an empty stomach?
It had been years since I previously vomited, if not decades.Anyhow, my nausea while taking the doxycycline seems to be more neurological than gut-related. Watching TV or doing much of anything on my laptop makes me feel pukey, but staring out the window or laying down with my eyes closed resolves it pretty well.
MeSci
ME/CFS since 1995; activity level 6?
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- Cornwall, UK
Like motion sickness?
Yup
MeSci
ME/CFS since 1995; activity level 6?
- Messages
- 8,233
- Location
- Cornwall, UK
Yup
Commiserations. I get that a lot now, but only in moving cars or badly-driven buses - and the occasional ambulance. Not fair to have it when you're not moving!
I'm into week 2 of the doxycycline and clarithromycine now. I've discovered that if I wake up early (6-6:30), swallow the dissolved doxy in a little water, and drink a cup of plain water, I can lay back down and rest/doze/sleep for a couple hours and not getting any motion sickness at all. My stomach itself seems to have no problem with the doxy - just my brain, from 30-120 minutes after taking it.
Still feverish and having low blood pressure and/or pulse pressure every day. It hits worst in the late afternoon and early evening, so I need to do my showering pretty soon after my doxy nap. Yesterday my heart rate was 100-110 sitting with my feet up, 90-95 laying down, and hit 130 when I walked 20 feet to the kitchen to refill my water jug Fortunately it only lasted a few hours, and I was able to get some sleep when the time came around.
My mother's going to try to come and visit to take care of me again, since I really can't even cook. My in-laws are closer and also very helpful, but they have a nasty cold or flu currently, so are feeling pretty poorly themselves, and I really don't want to catch a virus right now.
I'm scheduled to go back to see Dr de Meirleir on November 17th, when these antibiotics are done.
Still feverish and having low blood pressure and/or pulse pressure every day. It hits worst in the late afternoon and early evening, so I need to do my showering pretty soon after my doxy nap. Yesterday my heart rate was 100-110 sitting with my feet up, 90-95 laying down, and hit 130 when I walked 20 feet to the kitchen to refill my water jug
Fortunately it only lasted a few hours, and I was able to get some sleep when the time came around.My mother's going to try to come and visit to take care of me again, since I really can't even cook. My in-laws are closer and also very helpful, but they have a nasty cold or flu currently, so are feeling pretty poorly themselves, and I really don't want to catch a virus right now.
I'm scheduled to go back to see Dr de Meirleir on November 17th, when these antibiotics are done.
Glad you've found a way of taking the doxy.........its a long course until 17th Nov
You're doing so well getting through this.
I presume the clarith is not causing the same problems.
Then its onto the herbals.
Mum to the rescue again, good on her. Did she get to see a LLMD in the US?
You're doing so well getting through this.
I presume the clarith is not causing the same problems.
Then its onto the herbals.
Mum to the rescue again, good on her. Did she get to see a LLMD in the US?
No nausea with the clarithromycine, but I do think that one's having the bigger impact on my orthostatic hypotension, since it would mean a pretty huge delay for the doxycycline to be causing my problems in the afternoon.
Yup, she's very happy with her. She's taking 2 months of oral Rifampin now for Bartonella and Lyme. She got a bit sick the first day (fever, exhaustion) but has been fine since then.
She actually started reacting again last night ... chills and fever for a bit
I've finished my fourth week of oral doxycycline + clarithromycin. Just 4 weeks left to go!
I'm still getting fevers daily, though usually just lasting several hours per day. Until yesterday when it started in the afternoon as usual, then lasted all evening, all night, and now all morning. Meh!
Nausea is still adequately solved. I just take the doxy when I wake up to pee between 3:30 and 6:30 am, then go sleep it off with no problems. I'm also getting less of a sucking-lemon pucker reaction when I chug it now. Maybe because I've managed to go so long without throwing up due to it
I'm still doing 4ME (Nexavir) injections once per day, and a really high dose of hydroxoB12 twice per week, intramuscularly. I tried the Choline-DHA but felt crappier after taking it. And I've felt consistently crappy the past several weeks, so it's difficult to try it again and discern if I feel crappy due to it versus everything else which is making me feel crappy.
Still no diarrhea, except intermittently after I eat too much gluten and/or egg whites. I seem to be having less of a reaction to gluten, dairy, and soy now. Very little swelling from them, if any, and my usual "base" level of swelling even seems to be diminishing. I'm also still taking probiotics and digestive enzymes.
I haven't been able to cook much for a while, since starting the new antibiotics pretty much. The hypotension is quite a killer in the evenings. So either I start something early in the afternoon, like a slow-cooking stew, or we order food to be delivered.
We're going to call or email for my tests results from last month in the next day or two, and are back in Belgium to see Dr de Meirleir on November 17th. Then hopefully off to Seattle to visit family in December, though no idea what sort of shape I'll be in!
I'm still getting fevers daily, though usually just lasting several hours per day. Until yesterday when it started in the afternoon as usual, then lasted all evening, all night, and now all morning. Meh!
Nausea is still adequately solved. I just take the doxy when I wake up to pee between 3:30 and 6:30 am, then go sleep it off with no problems. I'm also getting less of a sucking-lemon pucker reaction when I chug it now. Maybe because I've managed to go so long without throwing up due to it
I'm still doing 4ME (Nexavir) injections once per day, and a really high dose of hydroxoB12 twice per week, intramuscularly. I tried the Choline-DHA but felt crappier after taking it. And I've felt consistently crappy the past several weeks, so it's difficult to try it again and discern if I feel crappy due to it versus everything else which is making me feel crappy.
Still no diarrhea, except intermittently after I eat too much gluten and/or egg whites. I seem to be having less of a reaction to gluten, dairy, and soy now. Very little swelling from them, if any, and my usual "base" level of swelling even seems to be diminishing. I'm also still taking probiotics and digestive enzymes.
I haven't been able to cook much for a while, since starting the new antibiotics pretty much. The hypotension is quite a killer in the evenings. So either I start something early in the afternoon, like a slow-cooking stew, or we order food to be delivered.
We're going to call or email for my tests results from last month in the next day or two, and are back in Belgium to see Dr de Meirleir on November 17th. Then hopefully off to Seattle to visit family in December, though no idea what sort of shape I'll be in!
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She actually started reacting again last night ... chills and fever for a bit
I hope it all goes well for her... how are YOU doing? any major or even minor improvements since starting the treatment?
Mostly just herxing and feeling like crap
It makes it hard to tell if there's been any improvement. OI is bad due to the herxing, though in slightly different ways - I'm fine sitting up all day, never struggling with that at all, but after a minute of standing I'm in really bad shape. Plus my feet are turning dark red and itching like bastards when standing up, something which doesn't happen with my normal OI.Still little or no pain usually. Food tolerances have improved. Sleep seems better than usual, but was never particularly bad for me as long as I took NAC anyhow. Sinuses still produce some mucus, but it hasn't been yellow since the first week or so of starting the oral antibiotics. Prior to that it was yellow on a daily basis. I've got cognitive difficulties again, but that's probably due to the herxheimer reaction and frequent fevers.
How long can you expect a herx to go on for?Mostly just herxing and feeling like crap
Still little or no pain usually. Food tolerances have improved. Sleep seems better than usual, but was never particularly bad for me as long as I took NAC anyhow. Sinuses still produce some mucus, but it hasn't been yellow since the first week or so of starting the oral antibiotics. Prior to that it was yellow on a daily basis. I've got cognitive difficulties again, but that's probably due to the herxheimer reaction and frequent fevers.
Until the targeted form of Lyme is dead ... for the IV antibiotics it generally stopped a week or so prior to the end of the full 6 weeks of each.
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