Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Interesting. Not sure what's going on. The Depakote causes no rash, but I can't breathe and I develop heart palpitations. My breathing is labored. Plus....gastritis starts.
These are Depakote sprinkles. I put them under my tongue.
I have to take Zyrtec and Prilosec after taking the Depakote when the reaction starts.
The only reason I've heard to avoid B6 is to supposedly slow down the CBS gene. But the recommendation for doing so is completely baseless.I am also not supposed to take B6 due to my 23 and Me test.
It's not a matter of belief. It's a matter of reading the research and following the science, versus jumping on the Yasko CBS bandwagon. Your doctor is wrong. Many doctors are wrong about CBS, because they are trusting an "authority" without critically investigating the claims being made.@Valentijn -You, I know believe this, but I am following the protocol and besides, I don't think B6 would do that much for me anyway. You are not into the whole CBS issue. I am following docs orders. It's not affecting me.
I find it a bit insulting to say I'm "not in tune". The problem is that I know a helluva lot more about the Yasko CBS SNPs than most doctors, due to their failure to look for a scientific source for those claims.@Valentijn -here's the thing Val....I don't have the inclination, or desire to learn the ins and outs of SNP's and methylation. You are not in tune with the CBS aspect of 23 and Me or Yasko's beliefs on that matter. I respect that, please respect that I am following them.
Your doctor is a human being. He is fallible. His beliefs about CBS are wrong. There are numerous studies showing this, and none which support his beliefs about CBS at all.This is my body and I am really tired of people/patients (on here) who aren't physicians saying my doc doesn't know what he is talking about, or that he is wrong.
Brilliant. Since we're sick, we're wrong about everything. I'm not even coming close to claiming to know how to cure ME, or anything else. I'm stating that the research on a very specific subject shows that Yasko's interpretations of CBS SNPs are completely groundless and even wrong.I think people on here need to remember...you are sick yourself..if you knew everything, you would be well!
Of course you're free to do what you want. And when you post potentially harmful disinformation, I'm free to point out that it is disinformation and that it can have a harmful impact.I want to be able to come on here and talk about what I am trying or doing without people going at me because they don't agree. Say what you feel once and leave it alone. We are all free beings and should be allowed to do what we want.
I've been kind of feeling the same way too lately.............I have recently decided to use the ignore feature.........has made a big difference for me!....................should have used it a long time ago.I am not liking Phoenix Rising anymore due to some members acting superior, or like they know everything. I can't take it.
I want to be able to come on here and talk about what I am trying or doing without people going at me because they don't agree. Say what you feel once and leave it alone. We are all free beings and should be allowed to do what we want.
It makes me sad that I don't even want to post, or be on here anymore.
Me too, at timesI've been kind of feeling the same way too lately.............I have recently decided to use the ignore feature.........has made a big difference for me!....................should have used it a long time ago.