I've gone back and forth between "ex-and" and "zand." Personally leaning toward "ex-and" at the moment.
Spelling out the letters, as in HIV, would be good, except that spelling out X-A-N-D seems cumbersome to me and doesn't exactly roll off the tongue. I kind of wish the new name was X-I-V. It would connote the seriousness of the disease, and be easier to pronounce. Everyone in media and society already has HIV down, so XIV would be easy for them to get, and to say. And since it's a retrovirus linked to immune deficiency, it makes sense: X-associated Immunodeficiency Virus.
As much as I love the new research and the prospect of us getting a new name, I wish that we could get an easy, understandable, non-confusing and serious name for this freaking illness. We've already had three decades of dealing with a terrible name, we don't need more confusion or difficulty, which I think XAND might present. But maybe all will go well with the new name. Hope so.
I wasn't thinking straight (a common occurrence for me!) when I posted earlier about calling it XIV. That wouldn't make sense. XMRV is the retrovirus, as is HIV. What we're looking for, and what XAND would be, is a name that would describe the illness that results from the retrovirus, as AIDS is the result of HIV. I was all brain fogged and not thinking. Seems to me XAND is as good as anything, and at this point, just about anything is better than CFS.