Explaining ME/CFS to others is one of the things that I find difficult sometimes, especially when I'm tired. I'm trying to memorize a compact message so that I don't have to think. I've searched and haven't found a thread on this - hope I haven't missed it. I vaguely remember talking about this a bit when I joined the forum two months ago and it was helpful.
I'd be interested in what others say.
The quote I'm trying to memorize is from Dorothy Wall, author of Encounters with the Invisible (a book on her ME/CFS experience and more):
islandfinn
I'd be interested in what others say.
The quote I'm trying to memorize is from Dorothy Wall, author of Encounters with the Invisible (a book on her ME/CFS experience and more):
When people don't understand my illness, I always give them some brief information about the organic nature of CFS, such as: "For many people, CFS is triggered by an infection of the central nervous system, and when the brain is affected, it in turn causes dysregulation of other body systems, so that my endocrine system, immune system and autonomic nervous system all don't work right."
I emphasize that my body doesn't work the way a normal person's does. This takes the conversation out of the realm of will-power or laziness.
islandfinn