Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
I make it in steps:
1 put chicken in water with salt and vinegar and put on low heat. Lay on couch.
2 cut up sellery stalks with scissors, put in colander, rinse. Lay on couch
3 chop up ginger, place on top of sellery. Place paper towel on chopping plate. Lay on couch.
4 scoop scum from chicken in water and place it on paper towel. This is the hard part since you have to be up and standing at a prefixed time: just before the water boils.
5 put in sellery and ginger. Let boil and simmer for hours. Lay on couch all that time.
This feels like a really basic question but... how do you eat? Often I don't have the energy to cook, but delivery is expensive and a lot of packaged foods seem really unhealthy. Any tips for keeping myself fed?
Thanks!
My heart rate monitor sometimes claims that my HR is really low, when standing too long. But right before and after being "too low", it's actually too high without ever passing through the normal zone. So my theory is that my pulse is getting too weak for the monitor to pick up each heart beat (I get very narrow pulse pressure sometimes), and is only counting one-half or one-third of my heart beats. And indeed, I'll have just had a heart rate of 120, and it'll start saying 60 or 40 (even though I feel exactly the same as 120), then bounce back to 120.I use an ironing chair with a little plastic footstool for my feet so that I can sit at the cooker or kitchen surface as standing usually makes my HR too high and occasionally too low.
No, I haven't manually checked mine. I guess we have different things going on with our OI@Valentijn do you manually check? I can tell when mine goes too low as I feel a certain feeling, and when I check with my fingers sure enough my heart is beating very slowly. I do have AI thyroid disease though so I wonder if that affects it. I get it lying/half-sitting too. It's just annoying standing up as it makes me feel weak.
I get the same type of sudden drop and then rebound in my heart rate with my pulse oximeter.My heart rate monitor sometimes claims that my HR is really low, when standing too long. But right before and after being "too low", it's actually too high without ever passing through the normal zone. So my theory is that my pulse is getting too weak for the monitor to pick up each heart beat (I get very narrow pulse pressure sometimes), and is only counting one-half or one-third of my heart beats. And indeed, I'll have just had a heart rate of 120, and it'll start saying 60 or 40 (even though I feel exactly the same as 120), then bounce back to 120.
If I stick on my pulse oximeter while this is happening, it also shows the 120 but has never shown the 40 or 60 readings.