How about setting up a local support group for people with ME and similar illnesses (don't worry too much about being exclusive to ME - there are other similar illnesses where people find the limitations frustrating)? Nothing grand, just meet up once a month (or even twice) somewhere pleasant for coffee (we go to garden centres). The big advantages are that everyone gets the good days/bad days episodes, no-one expects too much from you, and if you can't make it, well people understand. It can get a bit ME symptom-centric, but it is always possible to work on that. We have around 15 in our group, which means that we average 4 or 5 at a coffee meeting - just about right. I think one of the big bonuses is that it gets me mixing with people that I wouldn't have otherwise met, and keeps my world wider. Plus, when one person is going through an "ordeal" (such as moving house), the others can be very helpful.
I did that few years ago and it was lot's of fun. I couldn't do it now though I would just sit there with a "huh" look on my face when someone spoke to me. Even other ME sufferers can mistake a fellow sufferer as being "simple".
Your group sounds great! :Retro smile: