Shoshana
Northern USA
- Messages
- 6,035
- Location
- Northern USA
I'm also scared to go to another doctor and be dismissed, or be misdiagnosed and given a treatment that makes things even worse. I've lost confidence that doctors have any clue what I'm dealing with, but I don't really either.
How do I get out of this cycle?
This makes total sense to me, that we feel this way. It is an awful situation!
And not any of our faults. No one would choose this.
We do not know how to solve it, and the doctors we go to, don't seem to either.
We need help but are validly leary of being treated poorly, and given things that make us even worse.
I wish I knew how to get us all out of it.
Perhaps we need to do the best we can, with the doctors we can find, and bolster each other, the best we can, and hope for research breakthroughs.