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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I dont want to sound negative but i think the shrinks will see long covid as an opportunity. And for that reason am not very happy about the idea that the me/cfs community should be closely associated with the Long Covid community.I hope I am not being naive here, will the Psych brigade who have been so powerful in the UK let this go so easily? I doubt it but sincerely hope I am wrong.
I dont want to sound negative but i think the shrinks will see long covid as an opportunity. And for that reason am not very happy about the idea that the me/cfs community should be closely associated with the Long Covid community.
It is good to hear this said out loud on the BBC. Millions of people will hear it.I couldn't believe what I was seeing a mainstream doctor/researcher commenting on how badly CFS/ME patients has been treated over the past 20 years or more and how he hoped that when they find treatments for Long Covid, these treatments can then be offered to ME patients who so deserved this.
Maybe they will need evidence which repeats itself; such as -treatments for long Covid also working for ME/CFS patients in double-blind trials....over and over again. I also sincerely hope that happens, also that long Covid and ME/CFS have the same roots.Amazing to hear and very uplifting. I hope I am not being naive here, will the Psych brigade who have been so powerful in the UK let this go so easily? I doubt it but sincerely hope I am wrong.
For me personally I can't say I was ever pushed down a route of a psychiatric intervention, but perhaps it was just that I never complained that often. I did go the the doctors recently about something else and I also brought up my ME/CFS issue. The doctor who I'd never seen before basically just said "I think you're well !"