Horizon BBC2 UK this evening.
- Thread starter ruben
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That was really interesting, thanks @ruben It really will bring tears to the eyes if we get mainstream recognition and a treatment.
I couldn't believe what I was seeing a mainstream doctor/researcher commenting on how badly CFS/ME patients has been treated over the past 20 years or more and how he hoped that when they find treatments for Long Covid, these treatments can then be offered to ME patients who so deserved this.
They were looking particularly into our old friend the mitochondria and also to small fibres in the cells which carry oxygen, nutrients etc.
Amazing to hear and very uplifting. I hope I am not being naive here, will the Psych brigade who have been so powerful in the UK let this go so easily? I doubt it but sincerely hope I am wrong.
Pam
They were looking particularly into our old friend the mitochondria and also to small fibres in the cells which carry oxygen, nutrients etc.
Amazing to hear and very uplifting. I hope I am not being naive here, will the Psych brigade who have been so powerful in the UK let this go so easily? I doubt it but sincerely hope I am wrong.
Pam
Me too Pam. It could be a long year for us holding our breath to see what comes out of all this.
I dont want to sound negative but i think the shrinks will see long covid as an opportunity. And for that reason am not very happy about the idea that the me/cfs community should be closely associated with the Long Covid community.
I can see that as a possible negative but just hope that with people like that doctor speaking out might raise the correlations between ME patients who first got sick after a virus/infection having been affected in the same way as Long Covid patients . Obviously it needs a lot more researchers/doctors speaking out as their studies bear this out and if this were to happen then it just might override the psych's ridiculous position that somehow Long Covid patients aren't getting well because of their attitudes towards their illness.
I also think that the general public are likely to come into contact with someone who has had Long Covid and it might well be obvious to them that these people got sick because of Long Covid and it was absolutely nothing to do with any psychiatric issue. I have found that some of my friends find it much easier to accept now that ME/CFS sufferers definitely got sick because of an original virus/infection in view of what has happened in the last year.
Pam
I also think that the general public are likely to come into contact with someone who has had Long Covid and it might well be obvious to them that these people got sick because of Long Covid and it was absolutely nothing to do with any psychiatric issue. I have found that some of my friends find it much easier to accept now that ME/CFS sufferers definitely got sick because of an original virus/infection in view of what has happened in the last year.
Pam
For me personally I can't say I was ever pushed down a route of a psychiatric intervention, but perhaps it was just that I never complained that often. I did go the the doctors recently about something else and I also brought up my ME/CFS issue. The doctor who I'd never seen before basically just said "I think you're well !"
I've just had doctors either have a very sad look on their faces or act very frustrated and annoyed - not with me - but because they feel so helpless to do anything. GP's in the UK aren't specialists and I did get referred to a specialist who did loads of tests and ruled out cancer and motor neurons etc. But it's the specialists we haven't got. None of them get taken seriously even if they do exist. Whereas in America quite the opposite is true. They exist and at least get half the respect for it.
The last a&e doctor I saw knew there was nothing I could do because I had ME and that more or less meant I could only pray I didn't get any worse than I am today.
The last a&e doctor I saw knew there was nothing I could do because I had ME and that more or less meant I could only pray I didn't get any worse than I am today.
It is good to hear this said out loud on the BBC. Millions of people will hear it.
Maybe they will need evidence which repeats itself; such as -treatments for long Covid also working for ME/CFS patients in double-blind trials....over and over again. I also sincerely hope that happens, also that long Covid and ME/CFS have the same roots.
Then they'll have egg on their faces.
Maybe they will need evidence which repeats itself; such as -treatments for long Covid also working for ME/CFS patients in double-blind trials....over and over again. I also sincerely hope that happens, also that long Covid and ME/CFS have the same roots.
Then they'll have egg on their faces.
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I just asked what the hell was wrong with me and was sent to the Dept of exercise. [NICE]
The Doctors attitude is scripted IMO. Stops the patient from getting any real help. A form of gaslighting if you will.
The Doctors attitude is scripted IMO. Stops the patient from getting any real help. A form of gaslighting if you will.