heapsreal
iherb 10% discount code OPA989,
- Messages
- 9,898
- Location
- australia (brisbane)
@SOC - That's really interesting stuff! For one, it's amazing that you found a hematologist willing to treat an ME patient with serious medicine!
Dr. Jay Goldstein's first effective treatment for ME patients was IVIg. He used it on a lot of patients with very good results until he got too much pushback from the insurance companies - but it did seem to work.
Broadly, it's an anti-inflammatory. it's the treatment of choice in Guillain-Barre syndrome, which is the diagnosis I've gotten from a few neurologists.
Definitely keep us updated - I'm very curious to see how it works.
I dont think soc was being treated with ivig for her ME but for her immunoglobulin defiency .