XMRV is a retro virus like HIV and HTLV. But there is good news too.
HIV destroys a persons immune system. That does not happen to us.
With rest, we can improve. I am a considerably better then 5 years ago, almost pain free.
If the XMRV test was easier to get in Aus, I am still not sure I would get it done yet. I have seen people who I am sure have ME, still test negative. I think the test is far from perfect and giving false negatives. Let them perfect it, then we can get it done.
Because the medical world abandoned us, the ME patient community is well organized online. You can find lots of help online for managing symptoms and, as I said, it is possible to improve to where life is enjoyable. Good luck.