Johnskip
Senior Member
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I believe unbound excess iron is a catastrophe and allowing all disease to manifest
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A reason for many of us is that we are "down a pint"--we have low blood volume already.why would it be bad for us to give blood????
how do you I know if I'm down a pint?A reason for many of us is that we are "down a pint"--we have low blood volume already.
You can be tested. The data from those who have been tested (usually tested as part of a dysautonomia work up) show that most have low blood volume.how do you I know if I'm down a pint?
how do you I know if I'm down a pint?
You would have to convince a doctor that this was necessary. The name for the procedure is "therapeutic phlebotomy."I think it would be helpful to get unbound excess iron out of the body??
Therapeutic phlebotomy is a blood draw procedure usually prescribed by a physician as part of a treatment of various medical conditions associated with accumulation of excess iron in the body. Common examples of such conditions are hemochromatosis, porphyrias and polycythemia. The procedure involves donation of a unit (about 500 cc) of blood on a regular basis. The blood draw stimulates the body to make new red blood cells, which require iron. Therefore, the process depletes the iron stores in the body as new red blood cells are made.
.Thirty-seven percent of respondents reported being voluntary blood donors prior to diagnosis. The mean rate of therapeutic phlebotomy for iron depletion was 2.6 units per month (mean duration, 13 months). The mean rate of maintenance phlebotomy was 0.5 units per month. Therapeutic phlebotomy rates varied by sex, age, reason for diagnosis, and severity of symptoms. Seventy-six percent of respondents reported full or partial insurance coverage of therapeutic phlebotomy charges. Seventy-six percent received therapeutic phlebotomy services in a hospital or physician's office and 30 percent in a blood center. Charges for therapeutic phlebotomy varied by site, with a mean cost of $90 in hospitals and $52 in blood centers
stored iron is measured by ferritin you do not want stored iron
true but can anyone diagnose why it is elevatedBut elevated ferritin doesn't always equal elevated stored iron. Only in about 10% of cases. Other things can elevate ferritin with normal iron stores.
Technically speaking we can't "diagnose" you, but some of us could say "oh my that reminds me of....." but you would need to post your most recent lab results for the following, along with the reference ranges:true but can anyone diagnose why it is elevated
My understanding is that anyone who has ME/CFS cannot donate blood.Oh you think you can give somebody ME by giving blood I disagreee, and I think it can actually help us by giving blood
Agreed. Even though the XMRV infection theory is questionable, I'm pretty sure the ban remains.My understanding is that anyone who has ME/CFS cannot donate blood.
true but can anyone diagnose why it is elevated
I think I said this in another post. My ferritin was normal but my hematologist said when you look at all the test results, it was it was an inflated number.But elevated ferritin doesn't always equal elevated stored iron. Only in about 10% of cases. Other things can elevate ferritin with normal iron stores.
I became aware of a case some years back of an ME patient with proven haemochromatosis who collapsed after giving some blood. The crash lasted much of the year. It scared the heck out of his doctors.A reason for many of us is that we are "down a pint"--we have low blood volume already.
This is correct. However high ferritin is not proof of high iron. Haemochromatosis is something like the eighth most likely cause of high ferritin, and there are tests to do that, but that means that there are seven more likely causes and many less likely causes.I believe unbound excess iron is a catastrophe and allowing all disease to manifest
This is only correct in some countries.My understanding is that anyone who has ME/CFS cannot donate blood.
I think the UK had a ban in force even before the XMRV claim. What happened in the middle of the XMRV claim was that the ban became widespread.Even though the XMRV infection theory is questionable, I'm pretty sure the ban remains.
And who would want to? I've always felt on the bloodless side, like I don't have enough to go around.My understanding is that anyone who has ME/CFS cannot donate blood.
However high ferritin is not proof of high iron. Haemochromatosis is something like the eighth most likely cause of high ferritin, and there are tests to do that, but that means that there are seven more likely causes and many less likely causes.