More easy advocacy!
Lets spread the message about ME/CFS by posting a Help Wanted ad in Craigslist on October 5, 2010. This only takes minutes and is an easy way to spread the message about this debilitating disease. Below you will find an example post that you are welcome to use. Please go to http://www.craigslist.org/about/sites for a craigslist in your area. For more information and ideas please go to Khalys blog at http://cfsuntied.com/blog2/2010/09/30/help-wanted-–-quackologists-need-not-apply-2/
Thanks to Kati and Khaly!
Looking for a maverick, principled physician willing to learn about ME/CFS
Patient with myalgic-encephalomyelitis (M.E., benignly labeled Chronic Fatigue Syndrome or CFS), urgently seeks an infectious disease, immunology, internal medicine, neurology, cardiology, or other specialist willing to learn about ME/CFS, for continued care. Doctor will be fearless in recognizing that ME/CFS is a serious, debilitating disease with multi-system, progressive pathology and likely infectious origin. Doctor does not categorically refuse to treat complex medical cases, in fact looks at these cases as a stimulating and rewarding challenge, if not an ethical obligation. Doctor is willing to: consider guidance from international experts in ME/CFS; acknowledge the growing mountain of evidence (5000+ peer-reviewed papers) that ME/CFS has a compelling biological basis; and consider emerging research from thought leaders such as Harvard, Stanford, the FDA, the National Cancer Institute (US), and the Cleveland Clinic, linking ME/CFS with Murine Leukemia-related viruses (XMRV/MLVs). Must be willing to refer patient for evidence-based biomedical diagnostics as needed, and to consider recommendations and test results from world-renowned ME/CFS experts, including AIDS experts familiar with ME/CFS. Must be willing to weather a storm of disbelief, including frank hostility from uninformed physician and peers who have dismissed this disease for decades. Must have willingness to speak up to colleagues about the growing and compelling associations of ME/CFS with a new human gammaretrovirus (XMRV/MLVs); and to support antiretroviral/immunomodulatory clinical trials when indicated by the science - is an asset.
In other words, must be willing to be at the leading edge of this profound neuro-immune disease, which may very soon be confirmed as the next AIDS.
http://www.facebook.com/pages/XMRV-Global-Action/216740433250?ref=nf#!/notes/xmrv-global-action/help-spread-our-message-post-an-ad-on-craigslist-for-appropriate-medical-care/448002326796
Lets spread the message about ME/CFS by posting a Help Wanted ad in Craigslist on October 5, 2010. This only takes minutes and is an easy way to spread the message about this debilitating disease. Below you will find an example post that you are welcome to use. Please go to http://www.craigslist.org/about/sites for a craigslist in your area. For more information and ideas please go to Khalys blog at http://cfsuntied.com/blog2/2010/09/30/help-wanted-–-quackologists-need-not-apply-2/
Thanks to Kati and Khaly!
Looking for a maverick, principled physician willing to learn about ME/CFS
Patient with myalgic-encephalomyelitis (M.E., benignly labeled Chronic Fatigue Syndrome or CFS), urgently seeks an infectious disease, immunology, internal medicine, neurology, cardiology, or other specialist willing to learn about ME/CFS, for continued care. Doctor will be fearless in recognizing that ME/CFS is a serious, debilitating disease with multi-system, progressive pathology and likely infectious origin. Doctor does not categorically refuse to treat complex medical cases, in fact looks at these cases as a stimulating and rewarding challenge, if not an ethical obligation. Doctor is willing to: consider guidance from international experts in ME/CFS; acknowledge the growing mountain of evidence (5000+ peer-reviewed papers) that ME/CFS has a compelling biological basis; and consider emerging research from thought leaders such as Harvard, Stanford, the FDA, the National Cancer Institute (US), and the Cleveland Clinic, linking ME/CFS with Murine Leukemia-related viruses (XMRV/MLVs). Must be willing to refer patient for evidence-based biomedical diagnostics as needed, and to consider recommendations and test results from world-renowned ME/CFS experts, including AIDS experts familiar with ME/CFS. Must be willing to weather a storm of disbelief, including frank hostility from uninformed physician and peers who have dismissed this disease for decades. Must have willingness to speak up to colleagues about the growing and compelling associations of ME/CFS with a new human gammaretrovirus (XMRV/MLVs); and to support antiretroviral/immunomodulatory clinical trials when indicated by the science - is an asset.
In other words, must be willing to be at the leading edge of this profound neuro-immune disease, which may very soon be confirmed as the next AIDS.
http://www.facebook.com/pages/XMRV-Global-Action/216740433250?ref=nf#!/notes/xmrv-global-action/help-spread-our-message-post-an-ad-on-craigslist-for-appropriate-medical-care/448002326796