Hi all;
I'm seeing a new doctor Friday and asked my sister to help me in case I'm too brainfoggy that day to cover all my bases. Hoped she'd jump in and do some research on her own but instead she asked me to link her some articles that were pertinent. Now I'm so foggy I can't find anything.
Can you help? I need research links, talks, whatever.
I started her on thefreeprisoner's transcription of Dr. Bell's talk as that has a good overview.
What I need now:
Something about post-exertional malaise, and how exercise doesn't improve but worsens our symptoms.
Something about drug sensitivity in ME/CFS patients, where we should have low doses.
Something on the danger of heart problems in ME/CFS patients. (I want to get some action re: my chest pains, no more mere stethoscopes and dismissals!)
Something on the (at least partial) success some people have had with antivirals, if only to treat secondary infections.
It will be a huge help to me if anyone can link some pertinent pieces of literature, for me to pass along. My sister can be a fierce and fabulous medical advocate but only if she's well-convinced.
thanks,
Creek
ps: please move this thread if I've created it in the wrong forum, thanks!
I'm seeing a new doctor Friday and asked my sister to help me in case I'm too brainfoggy that day to cover all my bases. Hoped she'd jump in and do some research on her own but instead she asked me to link her some articles that were pertinent. Now I'm so foggy I can't find anything.
Can you help? I need research links, talks, whatever.
I started her on thefreeprisoner's transcription of Dr. Bell's talk as that has a good overview.
What I need now:
Something about post-exertional malaise, and how exercise doesn't improve but worsens our symptoms.
Something about drug sensitivity in ME/CFS patients, where we should have low doses.
Something on the danger of heart problems in ME/CFS patients. (I want to get some action re: my chest pains, no more mere stethoscopes and dismissals!)
Something on the (at least partial) success some people have had with antivirals, if only to treat secondary infections.
It will be a huge help to me if anyone can link some pertinent pieces of literature, for me to pass along. My sister can be a fierce and fabulous medical advocate but only if she's well-convinced.
thanks,
Creek
ps: please move this thread if I've created it in the wrong forum, thanks!