Help needed! : Building Alliances


Senior Member
Reposting this from an earlier thread:

As is clear from the recent patent application submitted by WPI researchers and collaborators, the list of diseases in which XMRV is possibly implicated is very very long:

Prostate Cancer
Atypical MS
Bipolar Disorder
Female Cancers
................... and more.

ALL of these possible associations need to be investigated and that will take lots of research. In the meantime, the public needs to be aware that the virus is out there, is no doubt dangerous (there is NO SUCH THING as an infectious retrovirus that is NOT dangerous) and that research is badly needed to find effective testing and screening methods to stop its spread and protect the blood supply. The XMRV story is not just about us!

Therefore, we are trying to put together an outreach team as part of Project ENOUGH!!! These people will try to build alliances with patient organizations and forums for other diseases to design actions to ensure that the necessary research happens, and soon!

I hope there are some people out there who have some small awareness of one or more of these diseases who can offer to help reach out to these related patient groups.


Senior Member
This team is the one still desperately in need of members. We have some people for autism. That's about it. So please, if you know ANYTHING about any of these diseases or know someone that does, or are just interested in helping out in this area, send word!