Heart Attack from CFS Treatment

[Kathi]

Esther12, thank-you for your concern. Let's just say the heart attack did nothing to improve my condition, that is for certain. If anything it has been like climbing out of a well with oil slick hands. My EF is now at 35-40% ( 55%-75% normal) , so I am out of defibrillator territory. The left ventricular function is abnormal. The entire apex and mid and distal anterior septum are akinetic. ( don't move) The mid lateral wall is hypokinetic. The mid anterior , mid posterior wall , mid inferior wall and mid inferoseptum are severely hypokinetic. I am in systolic and diastolic heart failure. So what Dr. Pierotti / Dr. Teitelbaum's Fibro and Fatigue Center did was detrimental to my longevity, according to Dr.Cheney. This is really unfortunate because I have always maintained a healthy life style... There was no way I was having a heart attack until I met the Fibro and Fatigue Centers.

All of this is on top of having CFIDS/ME/ mold/biotoxin illness. I was tested and I have the dreaded genes that do not allow me to detox toxins from my body... 4 3 53.... I have MARCONS , as tested in my nasal passages , which is an antibiotic resistant staff. And Dr. Pierotti thought I wasn't sick.. I was a hormone only patient. If this isn't a case of true medical negligence, then nothing is.

 

[Kathi]

Sing, I did go before the CFS Advisory Committee last May10,2011 with the message of what happened to me. I try to speak out when I can...

 

[Sing]

Sing, I did go before the CFS Advisory Committee last May10,2011 with the message of what happened to me. I try to speak out when I can...

What a fighter! Thank you from me and many others, I'm sure.

 

[Esther12]

I hope things improve for you Kathi, and thanks for reminding everyone else of the dangers of following treatment protocols just on the advice of a doctor. It is hard to know what's best with a diagnosis like CFS.

 

[Kathi]

Sing your words are very very meaningful to me and I take them to my heart. This illness is difficult enough, you don't need misguided doctors messing it up more.... as they have done to me. Monies are tight and I have seen some people lose their homes because they paid for care at the Fibro and Fatigue Center , rather than pay their mortgage. If I can alert others, so something like this doesn't happen, then I feel good about that. Keeping this to myself would do no one any good. And perhaps more will be harmed. We are between a rock and a hard place as you say. My brother was a family physician and knew nothing about this illness. He learned from my research and helped his patients through me.

When I called the Academy of Family Physicians in Kansas they were telling me that doctors weren't interested in continuing education credits in this field. I told them they are misdiagnosing patients right and left and sometimes harming them. It was if I were talking to the wall. But I will continue to help when and where I can. That is why I went to Washington DC.