I've thought of testing for Chiari and P3C (positional cervical cord compression). I hadn't heart of the thered Cord Syndrome. The testing is an issue since I have no idea who to look for to test for it. I did call johns hopkins Chiari center and they said to just use any MRI and if I have it come see them, which was very shocking. I had talked to somebody who said they had Chiari and used a positional MRI with Hopkins Chiari center.
Places like Johns Hopkins and the Mayo Clinic are considered top notch for many conditions. But Hopkins isn't great for Chiari.
Some neurosurgeons will be capable of identifying Chiari, but very few can do the decompression surgery properly. Also, most of them will completely miss the Craniocervical Instability (CCI) that often comes in addition to Chiari. The CCI needs to be surgically fixed as well as the Chiari.
There are just a handful of Chiari/CCI/TC neurosurgeons in the world. They specialize in patients with these conditions, they publish research, and they innovate. Dr. Henderson, Dr. Bolognese, and Dr. Sandhu are in the USA. Dr. Gilete is in Spain.