Ah, I see the challenge now. A rotational CT would be much easier on your body, for sure.
To get a doctor to order it for me, I gathered all the info I could about how to actually do it, including one of the EDS neurosurgeons' rotational CT form letter so my doc would know exactly what to ask the radiologists. Then I gave her the medical papers and a short summary explaining why it's a medical necessity. And some examples of what it looked like in axial and 3d views for the radiologist to reference. Would you like me to send that to you?
I'm going thru billing/medical coding classes and could probably find the codes needed to order it too, since you're already dx-ed with CCI. The only thing your doc would have to do is check my notes and order it. The info might be enough to prove medical necessity to your insurance too.
Hi @GypsyGirl please would it be possible for you to send me all that info too? I need to have a CT scan as Dr Gilete won’t accept just a supine MRI scan. However every doctor I’ve asked here in the UK has no idea about this, and even if I do get someone to write flexion extension on the instructions, I doubt they would do the specific imaging I need or know what exactly to do or why I need to do it!