Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS

Markus83

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Why do you care what people on FB say? These are lay people. I highly doubt there is anyone who really can interpret mri scans properly. What did your radiologist say? I would send these scans to a specialist, I think there are several in the US and some will do telemedicine.
 

kelly8

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I care about what the people on the M.E. Spine and brain page think because most of them have either had the surgery or investigated the surgery. Our patient population has been extremely helpful in coming up with treatments and reviewing my stuff especially when most Dr's wouldn't help. My radiologist said the dens was pointed towards the spinal cord. But as Jeff has said many times the radiologists are NOT trained to look for this. The fact that something was found in itself was disturbing. I was expecting to not hear anything until Dr. B reviewed it.