Any ideas on where to go for imaging in the New York area?
New York is a supposed hot bed of top-notch medical care, but it has been very difficult to get decent imaging. I am severe/housebound and have a lot of difficulty walking. None of the hospital-affiliated radiology practices have upright MRI machines.
I ended up going to a dingy storefront radiology office called Stand-Up MRI New York, where I got an upright cervical MRI and an upright lumbar MRI. For the cervical MRI, they did flexion, extension, and neutral imaging. They are unable to do rotational cervical imaging -- they have never heard of it.
I had a telehealth consult with Dr. Gilete a few months ago, which cost $850. He said that my neutral cervical MRI images were so blurry that it was impossible for him to take any measurements. So he has no idea if CCI might be an issue.
Looking at my upright lumbar MRI, he noted that my spinal cord looked too straight, as if it is being pulled, possibly suggesting occult tethered cord. But to really evaluate for OTC, he said I should get a prone (face down) lumbar MRI. I haven't been able to find any radiology practice in New York that does that type of MRI.
He also said I would need urodynamic studies, but I haven't found a urologist willing to do it to rule in/out OTC. The two that I spoke to said that tethered cord is a pediatric diagnosis and they haven't heard of occult tethered cord.
Where have others gone to get imaging and testing done? It seems that many patients have successfully found doctors who know where to send them to get the necessary imaging. Are any in the New York metropolitan area?