Has anyone recovered in the Bay area ?

[frozenborderline]

https://aztsf.org/sedona-science/sc...l-engineer-explores-magnetic-energy-vortexes/

 

[Davsey27]

Bump

Any suggestions for doctors in the bay area for a cfs diagnosis would be greatly appreciated

Seeking a good place

My parents cannot support me forever

I am doing ok in southern Mexico but don't have money
to continue supporting myself.Ill volunteer if I need to
but looking for some stability

Thought of maybe learning message therapy in mexico.Business savviness/Me what the body can
tolerate are questions.

I find quiter small towns to be peaceful

The climate here is nice.Culture is nice

Generally people treat you nice

Grateful to be here

 

[frozenborderline]

I am doing ok in southern Mexico but don't have money

I've heard good things about the yucatan

 

[Davsey27]

Yes although the mold/ microorganisms can have an effect inside the homes near the beach.Maybe not the worst place but I wonder if its affecting the biome

I think the vortex thing you mentioned around Sedona is too.Actually felt camping out near Flagstaff was improving CFS the most and then when it got cold I left

 

[Davsey27]

Anyone know who would give you a begginng CFS diagnosis and maybe some Valcyte or other antivirals without a long waiting list I'm the Bay area?

Searching these forums seems like people who improve do so with antiviral treatments and other things doctors are willing to look for and play around with

CCI testing ,GMAF,Valcyte,Valtrex,Heavy metal/mold chelation avoidance things that have proven

I do agree with Debrored that if doctor doesnt recognize environment as important this is not good

Nonetheless getting diagnosed is important i would imagine


Thank You Debrored

 

[EddieB]

So I’m assuming your either back in the Bay Area or headed there?
I moved out of the south Bay Area, a couple hours further south, to get away from the craziness, hoping it would improve my illness. It’s nice here, but unfortunately I’m worse. So much for that...

My only suggestion would be to avoid so-called alternative health practitioners. There’s a LOT of those in the Bay Area. High priced quackery. You need an MD or nurse practitioner that can order tests and prescribe meds. They probably won’t be much help beyond that.

It’s taken a while, but I’ve been able to get a couple of doctors here that are at least somewhat helpful. It’s a semi rural area, so there’s not a lot of choices. They don’t know what’s wrong, but at least they are willing to admit it and support whatever I want to do.

I hope you find someone helpful soon. I can’t think of anyone to recommend, but if I come up anything I’ll post it.

 

[Davsey27]

Appreciate it Eddie,

If you dont mind sharing the names of these doctors
if they are able to give a diagnosis to a Me/cfs diagnosis new patient?


Currently in Mexico.Family in Folsom.

Exploring options

An M.D who will diagnose me would be nice

I dont blame you for doing to a rural area

Thanks

 

[EddieB]

I was diagnosed with cfs/me here by a nurse practitioner, Bethany Fisher. But “here” is several hours south of Folsom, so probably not much help. Maybe Sacramento? San Jose and San Fran are extremely expensive places to live.

If you did want to try antivirals like Valcyclovir, aren’t those easier (and cheaper) to get in Mexico?

 

[Davsey27]

My parents are in folsom and just looking for a good doc within a couple hours of there.

Valacyclovir is expensive I dont have insurance either

Considered CA disability if I were able to establish residency

Appreciate it Eddie

 

[Gingergrrl]

Any suggestions for doctors in the bay area for a cfs diagnosis would be greatly appreciated Seeking a good place

I was not able to read the entire thread and am not sure if you are still looking for a doctor in the Bay Area? If you are, I would recommend the Center for Complex Diseases (Dr. Kaufman, Dr. Chheda, and Dr. Curtin). They are located in Mountainview, CA.

 

[RHazra]

I haven't heard anything but a slow trickle of good stuff. This is new news to me. Obviously, not everyone is going to love anyone, but I wonder about the CCD now. Why is Kaufman leaving? What is he doing next? And what happens at CCD? I recently started to see Dr. Curtin and felt good about it overall. The fact that Kaufman and Chheda were the senior clinicians was comforting.

My son sees dr. Kaufman. He has moved to Seattle but is still with CCD

 

[Davsey27]

Just called the center for complex diseases in Mountain view

1000 bucks per visit for the first two

I dont have this kind of money just a 1200 stimulus

Check maybe coming within 4 weeks

They also require 500 dollar deposit.

Said probably 2 visits to get a CFS diagnosis

 

[Davsey27]

How about California State Medicaid docs that will diagnose CFS? Or Obamacare docs

Thank You

 

[EddieB]

How about California State Medicaid

I don’t know how you would find out, maybe to walk (or crawl) into an emergency room of a state or county hospital and be admitted.

 

[Jyoti]

@Davsey27 -- I no longer have Kaiser, but I know that their head of medicine for Northern CA changed course on ME/CFS about a year and a half ago--he decided it might actually be a thing and thusly, that the physicians under his supervision ought to respond in some constructive way to it. I think there was some increased training for staff and a decision to stop automatically dismissing patients who walked in with all the diagnostic criteria for CFS.

Someone else here might have more recent Kaiser NoCal experience here than I. Mine ended prior to this shift in policy so all I ever got from them were bored sighs and barely concealed rolls of the eye. I know you don't have Kaiser, but it can be cheaper than other insurance, and I believe (you'd have to check) there is a Medicaid option to choose them.

I have had almost no luck, like most of us, with a long string of doctors, some of them expensive, some not so much. I think I mentioned in a PM that I did get diagnosed by Anas Hana in Berkeley. I didn't get much treatment, but I did go to him with a carefully laid out list of symptoms and timing along with Fukuda, International and IOM criteria and he agreed that yes, it looked like there was match.

So...I think you might want more than a diagnosis? It is a wonderful place to get to--such joy to finally have it named and honored in some small way--but then what?

I hope someone here has a name in their pocket to share with you. In the meantime, I kinda wish I was in Mexico!

 

[delphis]

2 day cpet is brutal but gold standard for measuring degree of me/cfs disability
in california, i think it is https://workwellfoundation.org/ Betsy Keller at Ithica College also does these tests.
it's a difficult physical process that causes a severe crash, but it does measure and explain one's level of disability

 

[Davsey27]

I have looked into this cpet .

Seems like its close to 2 grand for two days of testing

Not sure if I can afford this

I appreciate it

 

[Davsey27]

I don’t know how you would find out, maybe to walk (or crawl) into an emergency room of a state or county hospital and be admitted.

Be admitted for pem?

 

[Davsey27]

Curious does anyone know of any good social security disability lawyers in the bay area or neuropsychologist who can help with ssd on the nuerofunctioning documentation side of things?

Thanks

 

[gbells]

Curious does anyone know of any good social security disability lawyers in the bay area or neuropsychologist who can help with ssd on the nuerofunctioning documentation side of things?

Thanks

Neuropsychological testing is the only reason I was able to get SSD disability. They substanted cognitive deficit and diagnosed me with a qualifying condition. The judge said every other medical provider (even their own examiners) wasn't credible and he didn't care about my ME.