frozenborderline
Senior Member
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I don't think that there are air quality metrics that measure the specific toxins and biotoxins that me/cfs people react to, which we haven't even identified yet.
I think there are some locations that are good year round, but this is largely true and something thr creator of thr maps has acknowledged. However one can still note general trends over the entire country and which places come up as really good or really bad.IOW, you can feel great someplace and it's totally ephemeral, so I'm reluctant to chase the mirage of the perfect place.... it's something that I think about a lot, though.
In new england, winter tends to be the best season for outdoor air, but in a lot of the country this is not true and late fall and winter things get worse-- i noticed this in Vegas.
I've heard a lot of bad things about her as well, but in my experience, she has been the best doctor I've ever had. I 100% credit her with my remission.Thanks to @hmnr asg and @debored13 for info about Chheda. I appreciate hearing it.
May I ask how did she bring about your remission ?I've heard a lot of bad things about her as well, but in my experience, she has been the best doctor I've ever had. I 100% credit her with my remission.
Outdoor toxin plumes associated w TCE (solvent used in computer manufacturing) Superfund sites in bay area and biotoxin may be a problem as well as the eMFI live just north of SF and I think one of the worst aspects of the "bay area toxicity" is our love of tech. Its a EMF smart meter everyone single person on a divice 5 G and god knows what else " machine wise" we are subjected to. There was a ton of mining done in the bay area so there is a lot of mercury here and the east bay has lots of industrial issues that said, if I could afford to stay here I wouldn't leave no matter how toxic it is. The idea of finding a place that I can afford seems impossible let alone finding a place that is less polluted or toxic. I have a matter of months left before I am homeless.
I am sick and paralyzed trying find a place to move. I have lost so many of my friends since I became disabled but at least I have two left here and there is some comfort in knowing a place. If I have to go I would like to go north but I am super sensitive to mold. I can't stand the heat so don't know how I would cope south. My nervous system can't seem to deal with noise, so how in the heck do I live in a apartment complex. I can't shovel snow, couldn't drive hours to see a doctor on and on.
my disability income is below the poverty level which makes me too poor to qualify for low cost housing so that leaves me with very few options. Do I move where there is no doctor? How do I get my medications? How in the heck do I look for a place if I have to travel or move my things. The list of HOW the BLEEP BLEEP do I do this is crazy long.
Every time I drive to the store and see all the people lined along the road way in tents and tarps my stomach tightens and the numbers seems to get worse each month. I live in fear that this is where I am heading, all because I got sick. I had money in my savings account, a good job, great credit I was super responsible. A " model citizen" that got sick too young to have to be collecting on Medicare.
The bay area is where there are some of the best doctors or some of the few doc's who treat but good luck getting in to see them. I have never been able to see anyone here and if I could get in I couldn't afford to see any of them if I did. Sandford has lost Montoya and they have only one doctor who sees ME patients. I can't say much about his treating paradigm but from what I ve read its pretty sad. Most of the doctors worth seeing their practices are full or closed. They are getting older and will be retiring and there really are no new young people to take their place.
We have plenty of high profile medicine being practiced here but I don't know if any of that matters . Right before thanksgiving I went to UCSF to see a pain specialist. He knew what he was going to offer me before I got there. He couldn't speak to any of my general pain or fibromyalgia he even told me my joint pain probably wasn't really joint pain. I just thought it was. I would have to see a specialist if I wanted to ask about my fibromyalgia pain or my more systemic pain or my questions about connective tissue possibilities. I actually thought that was what I was doing going to pain specialist.
I ended up getting occipital nerve block that " may or may not work but it is super safe" I ended up in so much pain I thought my head would literally explode . My migraine headache treatment left my in bed for ten days wishing I was dead. I was being treated for a piece of my body.. a piece of my symptoms by a doctor no matter how good intentioned can't begin to see how any treatment might play out for someone with ME ...assuming I have ME since I have never seen anyone who can really say this is what I have.
there is no easy road or soft place to land
My heat intolerance and sun intolerance were quite extreme when I left my place in vermont this summer. After months In better air they went away but come back when I'm in bad air. For example I can't tolerate taking a bath or using and indoor hot tub but I do amazingly well in outdoor hot tub in good areas. I sweat normally again.I can't stand the heat so don't know how I would cope south. My nervous system can't seem to deal with noise, so how in the heck do I live in a apartment complex. I can't shovel snow, couldn't drive hours to see a doctor on and on.
I don't know with certainty that I did in a scientific way but I'm quite sure. There are many plausible mechanisms, if you read Jen breas post on this she explains some of themhow did you get CCI from mold exposure?