i talk to the chronic fatigue np at standford tomorrow so maybe i will mention to her that the biggest problem right now has to do with constipation and that i don't know how to rest physically when i also have to go to the bathroom and that is exhausting.
You may be able to ask the Nurse Practitioner for a referral to Dr Linda Nguyen, specifically.
Dr Nguyen is one of the few physicians that I actually trust. She is incredibly smart, and hasn't lost her compassion for those that suffer from GI dysmotility.
She is ALWAYS up-to-date on the latest research, what solutions or treatments are on the horizon, and when she realized I was medication hesitant, she recommended herbal supplements to try first. Because her specialty (neuro gastroenterology) is still fairly niche, be prepared for a long wait for a first-time appointment, but it's worth it.
Dr Nguyen *might* be just the right person to look at your medical history and test results with fresh eyes and perhaps a different approach to your problem. That's what she did for me!
When I showed up in her office, I had an existing MISdiagnosis of "scleroderma esophagus," a feeding tube, and constipation. Her testing, interventions, suggestions, and guidance have greatly improved my quality of life. As I mentioned in another post, my constipation is no where near as complex, painful, or life-disrupting as yours, but Dr Nguyen has seen it all!