Basilico
Florida
- Messages
- 948
Well I thought this was a support forum. That's what I came here for. I would never doubt another person's symptoms or their dietary fixes because I had too many doctors tell me I'm just depressed, or there's no way I'm reacting to bread, or CFS is not a real disease. I thought we all faced the same doubt every day and came here to get away from it. Now maybe you can understand why it's wrong to tell somebody who came here for support that MAYBE they never actually had CFS. Well I think maybe I did have CFS. And maybe I did get better. And maybe other people can get better too. I certainly hope so.
I think that perhaps you are misinterpreting what I wrote. So I would like to try to explain.
First of, as I wrote previously, I am really glad that you found something that makes you feel better. If my husband and I found a cure, we would also be sharing our story here on PR in the hopes it might help someone else.
Unfortunately, online, when you search "CFS" and "cure" there are endless sham videos and personal accounts of people who claim to have had CFS that were cured by some variation of vitamins, raw foods, vegetarian diets, xyz diet, and on and on. There is an extreme ignorance as to what CFS is, that it is more than just fatigue, and that it can not be cured with any particular diet.
Now, from your symptoms, it's obvious that you had more than just fatigue, and I don't want you to interpret what I'm saying as meaning that you don't know what CFS is. I am giving this background info because many are skeptical (and rightly so) whenever people post about cures for CFS because there is so much junk science, so many charlatans, and so many people either mistaken or lying that it's difficult to analyze information being presented.
As far as I know, CFS has an unknown cause. There are thousands of hypotheses, but as of now, a diagnosis is made by excluding any known causes that could be responsible for the symptoms. It's only when every possible cause has been eliminated do we get diagnosed with the label "CFS". It seems to be not uncommon that people are diagnosed with CFS and after many years come to realize that their symptoms have a known cause; whether it's lyme or a mold allergy or something else. When that cause is treated or removed, the symptoms disappear. There is a super long thread here on PR arguing about this very idea.
I was not saying that you didn't or don't have CFS. However, I was suggesting that there is a possibility that you may have been mistakenly diagnosed with CFS because the true problem (glyphosate) was unknown as being the cause.
I think that glyphosate (or any other chemical) is unlikely to be a cause of CFS for several reasons in addition to what I already wrote.
1) Both my husband and I have taken all of the supplements on your list. In fact, I'd be surprised if most of the people here on PR haven't taken them also.
2) Both my husband and I have had little to no exposure to foods likely to contain glyphosate. I was a strict paleo eater for many years (no grains at all) and I ate only high quality local and organic grass-fed meats and vegetables. I know many on this forum with CFS have eaten in similar ways.
Again, I'd like to stress that I am very glad you have found something that has made a huge difference for you. Unfortunately, what seems to help you is an intervention that many here have already tried without success. This is why I think it will be unlikely to help others.