• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Giardia poll

The Giardia Poll

  • I tested positive for Giardia infection prior to getting ME/CFS

    Votes: 5 16.7%
  • I tested positive for Giardia infection at about the time I came down with ME/CFS

    Votes: 0 0.0%
  • I tested positive for Giardia infection after I came down with ME/CFS

    Votes: 2 6.7%
  • I tested negative for Giardia after I came down with ME/CFS

    Votes: 2 6.7%
  • I have not been tested for Giardia.

    Votes: 22 73.3%

  • Total voters
    30
  • Poll closed .

CJB

Senior Member
Messages
877
I voted "have not been tested", but I've had dogs that tested positive for this and were treated, so it's not at all out of the question that I may have been infected at some point, although if I was, it passed without note.
 
Messages
15,786
I voted "have not been tested", but I've had dogs that tested positive for this and were treated, so it's not at all out of the question that I may have been infected at some point, although if I was, it passed without note.

Same here. Though if I contracted anything as a result, it was 6 months prior to getting ME.
 

SOC

Senior Member
Messages
7,849
I've never been tested, but I backpacked in the Colorado mountains -- an excellent way to contract giardia, so I wouldn't be surprised to find I'm infected with it along with everything else. :rolleyes: On the other hand, I have none of the typical GI symptoms associated with ME/CFS, so giardia infection seems unlikely for me.
 
Messages
21
February 8, 1991 First clear CFS symptoms.
May 10, 1991 First GI symptoms which continued until about 1995 when I finally gave up all physical exercise.
October 28, 1991 Giardia screen (EIA). Negative.
January 15, 1992 B. hominis found.
February 8, 1992 B. hominis found.
 

justy

Donate Advocate Demonstrate
Messages
5,524
Location
U.K
In 1992 i moved to a new town with my partner and baby, for the next two years my partner and i had constant stomach bugs and GI 'flu's' I then developed IBS - in 1994 i developed M.E. I was told my IBS was incurable - but when my M.E went into remission in about 1999 my IBS symptoms dissapeared, but returned with my relapse in 2008.

An important point i would like to make is that in most cases in the UK you are told you have ' The flu, a virus etc' no matter what you actually have. The NHS rarely tests for which actual thing you have unless they suspect you have a notifiable disease such as measles. Most of us in the UK would have no idea what the trigger nfection was. I even had a lung infection at one point for 14 months and nobody thought to do a sputum test!

Metronizadol - i wasnt treated for the GI issues withh this, but was 4 years ago to try and clear up that lung infection - it made me so ill i thought i was going to die.
All the best (and thanks to Oceanblue for the article)
Justy x
 

Googsta

Doing Well
Messages
390
Location
Australia
I had never considered this before this great article, thanks Oceanblue ;)

Two months before I developed Whooping Cough & M.E I had a severe bout of what was beleived to be gastroenteritis. The cramps were horrendous, I could not hold any fluids for more than a few minutes & lost 6kgs in a week.
At the time I worked with animals.

Considering how many of us were never tested, maybe this rules out, at least to a greater extent the treatment being the culprit?
 

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
Ive never been tested with it... my ME started off virally symptoms which dont sound like this illness.

I know some of the water holes where I used to camp are affected by Giardia as I know someone who got it from drinking out of one. (all the wild goats out there use the same drinking sources)

"The most common symptoms of giardiasis are diarrhoea, nausea and stomach cramps. However, in some cases there may be no symptoms at all."

I do doubt I could of ever caught it (I think I did boil all water from there), I did thou swim in that water (but I already had ME at when I went swimming there).
 

leela

Senior Member
Messages
3,290
A very bad, long bout of giardiasis was the final straw for my immune system, after which I was diagnosed with
"CFS" based mostly on some bloodwork. If ever you get it go *straight* to Tindamax!
 

hixxy

Senior Member
Messages
1,229
Location
Australia
I had cryptosporidium and blastocystis hominis at same time 3 years ago (along with candida, campylobacter and SIBO). :eek::eek:

Also, "parasite present - taxonomy unknown", still have this one.
 

Crux

Senior Member
Messages
1,441
Location
USA
I was diagnosed with a Giardia infection not quite 32 yrs. ago. My symptoms included severe fatigue. What was a bit unusual was that I was severely constipated. I think the internist suspected the infection because I worked at a ski resort, and frequented the backcountry. ( must have eaten some yellow snow). The symptoms manifested during a river trip. Maybe constipation was a fortunate condition in that case.

I have had many periods of CFS that were concurrent with IBS. Now that I think about it, when one was most extreme, so was the other.