Bizarre. The "benefits" of exercise which they list have not been reported in ME patients, nor even as a result of GET in non-ME patients. It's the benefits of exercise in healthy people 
It's a bit funny where they say how safe GET is ... and then discuss how if it made you sicker in the past, it's because you did it wrong. It's going to sound pretty crap, even for someone who hasn't been harmed by GET yet.
The underlying theory is given as deconditioning. I'm pretty sure there's 0 evidence of that, and even the PACE authors have reluctantly shuffled away from that claim while muttering incoherently under their breath.
There's also no mention of the use of heart rate monitors, despite that NICE says they should be incorporated into a GET program for ME patients. Their only mention of heart rate is that it's normal for it to be elevated - but they don't say how elevated it should be from, for example, standing up for two minutes.
Honestly, this is one of the worst guidelines I've ever read, even from the psychobabbler crowd. They ignore everything about ME, including a lot of biomedical research, and even make NICE look good by comparison. If someone considers themself enough of an expert to produce a treatment guide, they are damned well beholden to examine all of the evidence, not cherry pick, spin, and hype data and hypotheses which support their ridiculous beliefs.
I think there are good grounds to officially object to this tripe, since they are ignoring and even contradicting the very basic safety measures built into GET as described by NICE. It's just inexcusable.
It's a bit funny where they say how safe GET is ... and then discuss how if it made you sicker in the past, it's because you did it wrong. It's going to sound pretty crap, even for someone who hasn't been harmed by GET yet.
The underlying theory is given as deconditioning. I'm pretty sure there's 0 evidence of that, and even the PACE authors have reluctantly shuffled away from that claim while muttering incoherently under their breath.
"In other words" this has never been shown to happen in ME patients, with a GET program or anything else. But they're happy to extrapolate that very ill people will react exactly as healthy people do to reconditioning, despite the research showing otherwise.
There's also no mention of the use of heart rate monitors, despite that NICE says they should be incorporated into a GET program for ME patients. Their only mention of heart rate is that it's normal for it to be elevated - but they don't say how elevated it should be from, for example, standing up for two minutes.
So symptoms of a "real" illness like a cold can be a reason to ease off. But we should push through the presumed imaginary ME symptoms. These quack fucktards seem bound and determined to make their ME patients as sick as possible, and to completely ignore as much as possible about the disease. I hope they get sued for the damage they do, and lose their medical licenses.
Honestly, this is one of the worst guidelines I've ever read, even from the psychobabbler crowd. They ignore everything about ME, including a lot of biomedical research, and even make NICE look good by comparison. If someone considers themself enough of an expert to produce a treatment guide, they are damned well beholden to examine all of the evidence, not cherry pick, spin, and hype data and hypotheses which support their ridiculous beliefs.
I think there are good grounds to officially object to this tripe, since they are ignoring and even contradicting the very basic safety measures built into GET as described by NICE. It's just inexcusable.
