So glad you enjoyer my blog!
Valtrex was the first one I tried, at the time, not knowing it wouldn't do much for the HHV6. I was on very high dose of Famvir for four months and my doctor thought I should have seen a difference so I convinced him to put me on Valcyte, I just had a gut feeling that I would be one of the 50% who would benefit from it.
I got sick in September 2009, the best and most active year of my life. I suffered from a very nasty cold and sore throat in August and early September the three week severe insomnia started followed by the severe fatigue and not being able to lift my feet when I walked. ( I tested negative for mono at the time). It was straight downhill from there.
as with POTS, tachycardia etc. When I was still bedridden I would get POTS symptoms when getting up. At the very beginning of my illness, standing up still was already a problem. Even with Valcyte, if I over do it in any way I still pay. Having conversations wipe me out. I have days when I am very short of breath, a sign not to do anything. I also find chewing very tiring. when I'm in crash mode my eyes burn, I believe that's a sign that some inflammation is going on.
I don't need much to be happy and would be ok if I don't improve beyond this point. I lived the best life ever before getting sick and those memories can keep me going
Best of luck to you!!
. let us know how you make out