- Messages
- 75
Long story short, dealing with H2S SIBO, have been for a number of years. Also seem to have symptoms that may be occuring due to LPS leaking into blood stream. Tried Rifaxmin, no effect. Have tried all kinds of diets etc, can offset H2S symptoms with low sulfur/cystein/sulfite diet, but still dealing with LPS symptoms.
April 2019, had a very obscure bout of diarrhea, with the most intense need to go to the toilet. Was doing a keto diet and for illogical reasons, decided to cut all my electrolytes in diet that week. I assume I induced such an electrolyte imbalance that it caused the watery diarrhea, and the intensity presumably to do with a spasming of the entire bowel. Regardless, after that bout, ALL of my symptoms were entirely gone. Ultimately they came back.
The only other thing i've tried that helped so far, was metoclomapride. Trialed for only a few days on Gastro's advice, 48-60 hours in, symptoms started to lift, but only had 5 day course. Can't use Metoclomapride long term due to safety issues. I have just attained some Prucalopride to trial myself, given metroclomapride working.
It seems to me my upper gut is just a little stagnant / not clearing properly, hence build up of bacteria in small intestine (SIBO). Probiotics worsen by symptoms, which leads me to believe its commensal bacteria. Also stool testing shows no presence of any concerning pathogenic bacteria/fungi/parasites etc.
I have tried to recreate the level of urgent diarrhea that occured in April 2019 with no avail (2 Sachets of Picolax, 25g single dose of chewable vitamin, super high dose sugar alcohol ingestion, salt flush, castor oil) - all of those things give me diarrhea, but do not cause the level of urgency I experienced in April 2019 (I can easily withhold it, there's no real 'need' for me to go, whereas in APril 2019, it was coming out and no one was stopping it lol!)
Now my conclusion has always been this: electrolyte imbalance due to my radical diet changes caused the diarrhea and intestinal spasm-ing, which inadvertently cleared the small intestine. Alas, symptoms entirely gone. But inevitable relapse over time as bacteria builds back up due to underlying cause of MMC impairement not addressed. Now the issue is, whatever occured in that day, I can't seem to recreate, but the fact that metoclomapride provided benefit, suggests the mechanism is likely correct.
Now to my actual question.. The only other theory I question about April 2019, was that, AFTER the bowel clearing, my digestion felt super normal (normally it feels like food passes slow, appetite takes a long time to arise, can very easily subside on little food if only eating to appetite.) The likely hood is, that my prior theory is probably what happened, and thus the benefit isn't repeatable.
But - something I came to wonder the other day was this. When the urgency occured, I was on my way to my job at the time, I used every ounce of will and strength in my body and soul that day not to soil my car.. I had to spend about 20 minutes holding back this uncontrollable need to defecate, and somehow by some kind of miracle, I made it to the toilet in time.. just.. literally (lol)
Given that the vagus nerve seems to play a role in MMC function and possibly SIBO, I do question if the underlying cause of my SIBO and upper gut dysfunction (given the lack of any other obvious cause after COMPREHENSIVE testing), is poor vagal tone.
In my research on how to stimulate the vagus nerve, some sources claim that the use of an Enema, more specifically the effort to hold an enema before releasing it, can be a means of vagal stimulation.
SO I did come to question recently, whether or not the act of holding back this urgent diarrhea, and bearing down on my gut so intensely for 20 minutes or so, by some chance caused some extreme stimulation of my vagus nerve. The reason I wonder this, is because my digestion felt so so normal for a period after having the incident (akin to the way it felt on metoclomapride.)
Given that my attemps to recreate the urgent need to defecate have all failed, I can't recreate this scenario where I'm holding back an urgent bowel movement to see if doing so, might so how cause a similar result by means of vagal stimulation.
So my question with regards to Enemas is:
Is an enema 'difficult' to hold back? Does holding an enema feeling like resisting the urgent need to defecate? And does it create an urgency such that it's almost impossible for anyone to hold it for say, more than 30 minutes?
If anyone who has done an enema can advise me on that, that would be hugely appreciated.
I know this is pretty wild speculative theory, but I've got to cover all bases for my own sake.. and if it seems worth it, I may order a home enema kit and give it a go.
Thanks all!
April 2019, had a very obscure bout of diarrhea, with the most intense need to go to the toilet. Was doing a keto diet and for illogical reasons, decided to cut all my electrolytes in diet that week. I assume I induced such an electrolyte imbalance that it caused the watery diarrhea, and the intensity presumably to do with a spasming of the entire bowel. Regardless, after that bout, ALL of my symptoms were entirely gone. Ultimately they came back.
The only other thing i've tried that helped so far, was metoclomapride. Trialed for only a few days on Gastro's advice, 48-60 hours in, symptoms started to lift, but only had 5 day course. Can't use Metoclomapride long term due to safety issues. I have just attained some Prucalopride to trial myself, given metroclomapride working.
It seems to me my upper gut is just a little stagnant / not clearing properly, hence build up of bacteria in small intestine (SIBO). Probiotics worsen by symptoms, which leads me to believe its commensal bacteria. Also stool testing shows no presence of any concerning pathogenic bacteria/fungi/parasites etc.
I have tried to recreate the level of urgent diarrhea that occured in April 2019 with no avail (2 Sachets of Picolax, 25g single dose of chewable vitamin, super high dose sugar alcohol ingestion, salt flush, castor oil) - all of those things give me diarrhea, but do not cause the level of urgency I experienced in April 2019 (I can easily withhold it, there's no real 'need' for me to go, whereas in APril 2019, it was coming out and no one was stopping it lol!)
Now my conclusion has always been this: electrolyte imbalance due to my radical diet changes caused the diarrhea and intestinal spasm-ing, which inadvertently cleared the small intestine. Alas, symptoms entirely gone. But inevitable relapse over time as bacteria builds back up due to underlying cause of MMC impairement not addressed. Now the issue is, whatever occured in that day, I can't seem to recreate, but the fact that metoclomapride provided benefit, suggests the mechanism is likely correct.
Now to my actual question.. The only other theory I question about April 2019, was that, AFTER the bowel clearing, my digestion felt super normal (normally it feels like food passes slow, appetite takes a long time to arise, can very easily subside on little food if only eating to appetite.) The likely hood is, that my prior theory is probably what happened, and thus the benefit isn't repeatable.
But - something I came to wonder the other day was this. When the urgency occured, I was on my way to my job at the time, I used every ounce of will and strength in my body and soul that day not to soil my car.. I had to spend about 20 minutes holding back this uncontrollable need to defecate, and somehow by some kind of miracle, I made it to the toilet in time.. just.. literally (lol)
Given that the vagus nerve seems to play a role in MMC function and possibly SIBO, I do question if the underlying cause of my SIBO and upper gut dysfunction (given the lack of any other obvious cause after COMPREHENSIVE testing), is poor vagal tone.
In my research on how to stimulate the vagus nerve, some sources claim that the use of an Enema, more specifically the effort to hold an enema before releasing it, can be a means of vagal stimulation.
SO I did come to question recently, whether or not the act of holding back this urgent diarrhea, and bearing down on my gut so intensely for 20 minutes or so, by some chance caused some extreme stimulation of my vagus nerve. The reason I wonder this, is because my digestion felt so so normal for a period after having the incident (akin to the way it felt on metoclomapride.)
Given that my attemps to recreate the urgent need to defecate have all failed, I can't recreate this scenario where I'm holding back an urgent bowel movement to see if doing so, might so how cause a similar result by means of vagal stimulation.
So my question with regards to Enemas is:
Is an enema 'difficult' to hold back? Does holding an enema feeling like resisting the urgent need to defecate? And does it create an urgency such that it's almost impossible for anyone to hold it for say, more than 30 minutes?
If anyone who has done an enema can advise me on that, that would be hugely appreciated.
I know this is pretty wild speculative theory, but I've got to cover all bases for my own sake.. and if it seems worth it, I may order a home enema kit and give it a go.
Thanks all!