Hi All,
Considering Florinef, for what may be neurally-mediated hypotension.
In my very first look I see it is a steroid, would affect kidneys mainly (/adrenals) etc.
STEROID = immune suppressant. How is Florinef safe-- aren't steroids a bad idea with our reactivated viruses? (me: High EBV, pretty high HHV-6).
Also, what are long-term side affects?
I'd SOO appreciate hearing your experience with Florinef (just a few words summary if you're exhausted!! good, bad, worth trying, not worth trying...)
A reason I'm also considering it-- is because I'm told it may allow me to tolerate immunomodulators better? (that's what I heard from one doc).
However I'm so wary of starting a drug JUST to treat symptoms, but...if it helps me get to where i can treat the actual disease (with immunemods, in theory),. then I guess worth a try? (so long as no major negative side affects?
Overall I've gotten mixed thoughts from the docs on this one, and my own feelings are mixed. So would love your input.
Many, many thanks,
Htree
Considering Florinef, for what may be neurally-mediated hypotension.
In my very first look I see it is a steroid, would affect kidneys mainly (/adrenals) etc.
STEROID = immune suppressant. How is Florinef safe-- aren't steroids a bad idea with our reactivated viruses? (me: High EBV, pretty high HHV-6).
Also, what are long-term side affects?
I'd SOO appreciate hearing your experience with Florinef (just a few words summary if you're exhausted!! good, bad, worth trying, not worth trying...)
A reason I'm also considering it-- is because I'm told it may allow me to tolerate immunomodulators better? (that's what I heard from one doc).
However I'm so wary of starting a drug JUST to treat symptoms, but...if it helps me get to where i can treat the actual disease (with immunemods, in theory),. then I guess worth a try? (so long as no major negative side affects?
Overall I've gotten mixed thoughts from the docs on this one, and my own feelings are mixed. So would love your input.
Many, many thanks,
Htree