Hi
The IOM sent out an email message today announcing the first meeting of the IOM Committee for ME/CFS Diagnostic Criteria. The meeting will be held in Washington on Jan 27-28.
The full text of their email message was:
One note I bolded the statement that one of the meeting objectives is to get HHS, as sponsor, to clarify the scope of the charge.
I'm assuming but not sure that this relates to the question on what scope of disease these new criteria are intended to describe - that described by CC/ME-ICC or that described by the broader CFS definitions. Both Dr. Lee of HHS and Kate Meck of IOM have said that the scope of disease had not been decided yet and Ms. Meck said that HHS would be asked to clarify this at the first meeting.
The IOM sent out an email message today announcing the first meeting of the IOM Committee for ME/CFS Diagnostic Criteria. The meeting will be held in Washington on Jan 27-28.
The full text of their email message was:
Open Session for the IOM ME/CFS Study - January 27, 2014
The first meeting of the Institute of Medicine committee on Diagnostic Criteria for ME/CFS will be held January 27-28, 2014 in Washington, D.C. On the afternoon of January 27, the committee will hold an information-gathering session that will be open to the public. Interested individuals may attend the open session in person at the Keck Center of the National Academies or virtually via webcast or web conference.
This open session is one of the many processes that the committee will use to gather information and assemble evidence that it will examine and discuss in the course of making its findings, conclusions, and recommendations. The objectives for the committee during this open session are to clarify the scope of the charge (as outlined in the Statement of Task) with the study sponsors; learn more about separate yet relevant research efforts in the field of ME/CFS; and to seek input from patients, caregivers, health care professionals, and other stakeholders.
An agenda with information on the speakers for the session and the public comment period is being finalized. The agenda and registration information will be distributed via the listserv and posted on this webpage as it is available.
The first meeting of the Institute of Medicine committee on Diagnostic Criteria for ME/CFS will be held January 27-28, 2014 in Washington, D.C. On the afternoon of January 27, the committee will hold an information-gathering session that will be open to the public. Interested individuals may attend the open session in person at the Keck Center of the National Academies or virtually via webcast or web conference.
This open session is one of the many processes that the committee will use to gather information and assemble evidence that it will examine and discuss in the course of making its findings, conclusions, and recommendations. The objectives for the committee during this open session are to clarify the scope of the charge (as outlined in the Statement of Task) with the study sponsors; learn more about separate yet relevant research efforts in the field of ME/CFS; and to seek input from patients, caregivers, health care professionals, and other stakeholders.
An agenda with information on the speakers for the session and the public comment period is being finalized. The agenda and registration information will be distributed via the listserv and posted on this webpage as it is available.
One note I bolded the statement that one of the meeting objectives is to get HHS, as sponsor, to clarify the scope of the charge.
I'm assuming but not sure that this relates to the question on what scope of disease these new criteria are intended to describe - that described by CC/ME-ICC or that described by the broader CFS definitions. Both Dr. Lee of HHS and Kate Meck of IOM have said that the scope of disease had not been decided yet and Ms. Meck said that HHS would be asked to clarify this at the first meeting.