@deb74......I'm sorry you had the virus and hope that once you get out of your flare, that life will settle back to what's normal for you.
I had terrible FM for years and years, and then one day I noticed that it had more or less changed form. I've also suffered a number of falls (10 to be exact) since January due to coming off steroids and anemia. I now have pain between my shoulder blades all the time, can't stay in bed for longer than 20 min. at a time, exhausted to get out and then exhausted when I get back in. I'm hoping that some of this will go away when the anemia clears. So what I'm trying to say, is that it's true that the pain can/does change form as we get older and I was actually feeling not too bad until I had congestive heart failure in April. I hope yours will also disappear or change with time.
Each day for over 30++ years I've had to get ready for bed between 4-5:00 p.m. It's a time when my body just can't take anymore....by then I've been up for hours, sometimes all night, and I'm just worn out. People know not to call me after that time b/c I'm too exhausted to talk. Too exhuasted for anything, really. I perk up a bit after I've taken my meds and put on a compound cream for pain. I don't know how long you've been affected, but I do hope the researchers will come up with more than they have over the past no. of years. A lot of it wasn't their fault, there wasn't much in the way of govt. funding, the computer came along...and oh, the changes we've seen over the years. I think you'll have a much higher change of an answer of sorts (at least) than my age group ever did. We served our purpose, I have other illnesses that I helped set up support groups for and ME was not ever a primary diagnosis. Thank goodness I had a neurologist who had the good sense and knowledge to recognize it. Look, I just wanted to wish you, all of you, well. It's a most unpleasant illness and stops lives when it's really bad. Yours, Lenora.