Fecal Transplants

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Elph68

Senior Member
Messages
598
Hi everyone, let me bring to you the real truth on FMT. I am a patient with the CDD in Sydney Australia, they are the world leaders in this therapy. FMT does not cure ME/CFS, do not waste your time. What cures ME/CFS is the antibiotics they use before the FMT. The antibiotics kills everything that are potentially pathogenic. Then the FMT, replaces what has been killed with supposedly good bugs.

Currently I am in their program, and their first attempt to cure this is via antibiotics only, and this is the regime I am going to start next week.

For 1 month it is Vancomycin+ Augmentin Forte + Ciprofloxican + Azithromycin

I know the bugs that are causing this are resistant to all of these except vancomycin. That is why they are using triple+ antibiotic therapy.

I am going to list all my symptoms and I will post what happens ..... I have chronic prostatitis, chronic sore throat, swollen glands in my neck, geographic tongue, mouth ulcers, urethritis, balanitis, psoriasis, oozing sores, brain fog, insomnia, IBS, blurry vision, ringing ears, pins and needles in arms and legs, burning feet and hands, painful joints, post exertional fatigue, a body that feels like lead at times and various other 'conditions' that you are all more than aware of.

I really would like everybody to realize, FMT does not cure this and it is very dangerous to do it at home as you are at extreme risk of catching further infections such as proteus mirrabillus, golden staph and VRE, to name a few.

I will keep you posted as to how this goes.
 
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Lala

Senior Member
Messages
331
Location
EU
I wish you good luck, elph, let us know how you feel. Do you start all at once or gradually? This can be very strong.
Btw: What is VRE?
 
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Elph68

Senior Member
Messages
598
Lala said:
I wish you good luck, elph, let us know how you feel. Do you start all at once or gradually? This can be very strong.
Btw: What is VRE?
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Hi Lala .... this starts all at once .... VRE means Vancomycin Resistant enterococcus .... cheers
 
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Kimsie

Senior Member
Messages
397
tyson oberle said:
MishMash since a fecal transplant is most effective "into your small intestines" I wonder if we could just simply drink a fecal transplant instead of doing the enema? Does anyone know?
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I don't have time to read through this whole thread so maybe someone else has already answered this question. Yes, you can. You mix it with water and filter out the solids first.

Another method is to get O and OO gelatin capsules and quickly fill the O capsules and close and immediately put the O capsule into a OO capsule for a double layer. It helps to have two people working, because they only last a couple of minutes and you can only make about 5 before you have to swallow them. Try to take about 20 on a pretty empty stomach with a little baking soda to reduce the acidity and do it again in a few hours. Make the mixture pretty concentrated and strain through some cheesecloth. That's how we did it. We did the enema, too. We also prepared by doing GAPS diet for a couple of months first, but I don't know if that is needed or not. He stopped doing GAPS before the fecal transplant so that the good bacteria have the food they need to multiply.

We just did this on my son who has depression from histamine producing bacteria two days ago and today he can't take the usual dose of niacin without getting nauseated, so I am pretty sure it is working because the niacin isn't getting used up. We will try it on our other son who has schizophrenia, too, after he water fasts for a week or so to weaken the histamine producing bacteria. We can control his symptoms pretty well with supplements, but it would be better to get down to the root cause.

The donor is a 13 year old boy from a trusted family. The parents are into healthy eating and supplements so they were open to the idea and the boy was fine with it. He has never had antibiotics in his life!
 
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Elph68

Senior Member
Messages
598
Elph68 said:
Hi Lala .... this starts all at once .... VRE means Vancomycin Resistant enterococcus .... cheers
Click to expand...

I need to report after a week my brain fog has gone, the feeling my body is made of lead is gone, I can move around again as normal, my gut is all blown up and these horrid random pins and needles all over the place has become a lot worse ....
 
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Lala

Senior Member
Messages
331
Location
EU
Elph68 said:
I need to report after a week my brain fog has gone, the feeling my body is made of lead is gone, I can move around again as normal, my gut is all blown up and these horrid random pins and needles all over the place has become a lot worse ....
Click to expand...

That is great, hopefully pins and needles will improve too, with litlle bit longer time.
 
Soundthealarm21

Soundthealarm21

Senior Member
Messages
420
Location
Dallas, TX
MishMash said:
Spitfire,
There is an office in Oregon that sells s**t for this purpose. According to their website, it costs a mere $7000, but that includes "careful preparation" (probably using a blender the doc bought at Walmart), PLUS a "retreat" where after getting the "transplatation", you go off to some lodge, and engage in meditation, talk about your feelings, or some such baloney.

The doctor himself probably squats over a rusty cofffee can in his garage, then sells it to the poor c. diff. patients coming in the door. He knows other docs are not getting into this, hence the outrageous price.

By the way, Mayo Clinic, the stodgiest, most conservative hospital in the U.S. has proven many times that this therapy DOES WORK. Once again, I have to ask why our pseudo-brilliant genius cadre of CFS specialist docs has not shown the slightest interest in this simple, effective therapy. Idiotic. http://www.mayoclinic.org/medicalprofs/fecal-transplants-ddue1012.html

Where to buy commerical poop (if you can afford it):
http://fecalmicrobiotatransplantation.com/FMT/home.html
Click to expand...


Oh my goodness I'm dying of laughter. I needed that.
 
JT1024

JT1024

Senior Member
Messages
582
Location
Massachusetts
I can't participate as I would like so please forgive me if my post is redundant or no longer relevant to this thread.

Fecal transplants have been successful in treating C.diff and I know of two patients that have benefited from this treatment.

One received a transplant from his wife. The other participated in a clinical trial in Boston that provided the fecal transplant via a capsule. The source of the transplant was a healthy child.

Since hearing from my mother how appreciative one family was to learning about the capsule treatment and its success, I checked the clinical trial out online. There is the possibility that this treatment may become more widely available in the near future.
 
MonkeyMan

MonkeyMan

Senior Member
Messages
424
Elph68 said:
I need to report after a week my brain fog has gone, the feeling my body is made of lead is gone, I can move around again as normal, my gut is all blown up and these horrid random pins and needles all over the place has become a lot worse ....
Click to expand...

Hi Elph68! Can you give us an update on how you are doing? Thanks and Happy Holidays!!

Drew
 
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Elph68

Senior Member
Messages
598
end said:
THAT is the question, isn't it?

•Will it work for a CFS/ME patient?

Given 83% of Dr Chia's CFS patients test positive for GI Enterovirus's and Dr Chia has said "Probiotics help with the bacterial balance of the GUT but will have no effect on Enterovirus infection" - His interview with Cort posted on this forum, anyone feel like finding the link for me?

•That leaves 17% of us it may help?

Have I had multiple FT? - Yes. @ www.cdd.com.au

Did they help ME? - Not in the slightest.

Do I strongly suspect(organising testing)Enterovirus infection? - Yes.
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Hi End,

CDD use oral vancomycin and gentomycin for their FMT ..... that regime will not remove the pathogenic strains of Strep/enterococcus from the gut ..... I am trying to re-educate CDD now on how these bacteria are pathogenic and how they need to use IV drugs. See how I go ....

Their problem is they don't believe streptococcus/enterococcus in the gut is a problem ....

Have you had a bioscreen test http://www.bioscreenmedical.com/

Cheers.
 
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Elph68

Senior Member
Messages
598
n
end said:
Mate

So your saying the Cipro Aug Forte Azith etc combo you mentioned at the beginning of this thread being used in conjunction with the CDD program that you are part of is YOUR idea?

A decade ago Borody was using oral Flagyl and gentamicin pre FT - which is what they had me take

Yep, I had that Bioscreen test done a couple years ago and following that a Metametrix ecology profile and in both all the doctors said was that there was an over growth of E. Coli.... Like I already mentioned on another thread...

Only other pathogens were H. Pylori and a PPTU

Are you saying there should be 0% of Strep/entero in the human GUT???
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They wanted to use doxy/azithro originally .... I said that these bugs I have are already resistant to those.

vanco + Augmentin .... specifically targets enterococcus ... PROVIDED, it does not have high level resistance to augmentin .... cipro was for citrobacter freundi ... cipro + azithro was for prostate and sore throat ....

They don't believe strep is a problem, they don't agree enterococcus is a problem .... Brodie doesn't like Henry Butt from Bioscreen .....

It is the strain of strep that causes most of the problem, according to the papers I have ....

Streptococcus mitis group .... sanguinis, parasanguins, gordonii, mitis etc.

Considered normal flora .... but very close genetically to strep pneumonia.
 
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